Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
FDA Approves Ivacaftor for People with R117H Mutation of Cystic Fibrosis
December 29, 2014
The U.S. Food and Drug Administration (FDA) announced today that it has approved the use of ivacaftor (Kalydeco™) to treat people with cystic fibrosis ages 6 and older who have the R117H mutation.
2014 Great Strides, Great Stories - Team Sweeney
Great Strides, Great Stories: Spotlight on Team Sweeney, from the New York Chapter - Buffalo Office
New CFF Program Helps Bring More Research Staff to Clinical Trials Network
December 23, 2014
The Cystic Fibrosis Foundation has launched a new program that will fund 60 additional research coordinators to help speed the progress of CF clinical trials throughout its Therapeutics Development Network (TDN).
Advocates Raise Awareness and Speak Out on Vital CF Issues Across the Country
December 22, 2014
In 2014, the Cystic Fibrosis Foundation and advocates across the country played a vital role in shaping issues important to the CF community. CF advocates attended more than 500 meetings with elected officials and sent them more than 60,000 messages advocating on behalf of people with CF.
In The Spotlight: Kate Marshall
December 17, 2014
At 15, Kate Marshall never imagined she'd find herself in the national spotlight. But that's exactly what happened in December when Sports Illustrated named her their High School Athlete of the Month .
“I was shocked,” she said. “I thought to myself, 'I'm Kate from Maine. Why would they choose me?'”
Guests of Gateway Chapter's Reach for the Stars Gala Raise $308,000 to Help Support the Search for a Cure
December 12, 2014
When guests of the Cystic Fibrosis Foundation Gateway Chapter’s 23rd annual Express Scripts Reach for the Stars Gala arrived at the Ritz Carlton Hotel in downtown St. Louis, they were whisked away to the whimsical world of The Big Easy. The event raised more than $308,000 to help support the Foundation’s lifesaving mission.
Cystic Fibrosis Foundation Therapeutics Announces $15 Million Research Project for Development of Novel CF Treatment
December 10, 2014
Recall of Probiotic ABC Dophilus Powder Due to Mold Contamination
December 4, 2014
Solgar Inc. has voluntarily recalled select lots of ABC Dophilus Powder®, a dietary supplement sold as a probiotic for infants and young children. The recall is due to contamination with the mold Rhizopus oryzae, which may cause a potentially fatal fungal infection known as gastrointestinal mucormycosis.
2014 Great Strides, Great Stories - Team Mason
December 2, 2014
Great Strides, Great Stories: Spotlight on Team Mason, from the New York Chapter - Buffalo Office
Inspired by Story of Hope, Guests at CF Foundation’s Arkansas Chapter’s Breath of Life Gala Raise $145,000
November 25, 2014
When Katherine Lambert-Pennington was diagnosed with cystic fibrosis in 1974, her parents were told to prepare themselves for heartache. Katherine was not expected to live beyond the age of 7. Today, she is 42, married and an associate professor at the University of Memphis.
Volunteers Raise Funds and Awareness at CF Foundation’s 20th Annual Ultimate Golf Experience
November 24, 2014
Award winning comedian, writer, producer and longtime friend of the Foundation Lewis Black lines up a putt at the 20th annual Ultimate Golf Experience.
CF Foundation’s Gamechanger Strategy Featured on The Diane Rehm Show
November 21, 2014
The CF Foundation’s venture philanthropy model, which resulted in this week’s sale of royalty rights to CF treatments for $3.3 billion, was featured on The Diane Rehm Show on Nov. 20.
Follow Us On
With more than 70 chapters and offices across the country, there are plenty of ways to get involved.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
Sign up for our emails