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  1. 150 Advocates Rally Behind Pre-Existing Condition Protections During March on the Hill

    March 12, 2019

    One hundred fifty advocates, backed by more than 5,000 connections from an additional 1,600 cystic fibrosis advocates across the country rallied behind protections for people with pre-existing conditions, like CF, during the Cystic Fibrosis Foundation’s 13th annual March on the Hill.

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  2. CF Advocate Serves as Witness at Congressional Hearing on Pre-Existing Conditions

    February 6, 2019

    Chad Riedy, an adult with cystic fibrosis, served as a witness on Wednesday before the House of Representatives' Education & Labor Committee at a hearing on the threats faced by workers with pre-existing conditions.

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  3. CF Foundation Responds to Court Decision to Overturn the ACA

    December 17, 2018

    On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

  4. CF Teen Advocates Visit Capitol Hill for 10th Annual Teen Advocacy Day

    July 5, 2018

    More than 200 advocates from 32 states traveled to Washington, D.C., on June 28 for the Cystic Fibrosis Foundation’s 10th annual Teen Advocacy Day, which enabled teens to meet with their elected officials on Capitol Hill to fight for access to high-quality, specialized care for their friends and loved ones living with CF.

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  5. President Trump Signs Right to Try Legislation Into Law

    May 31, 2018

    Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.

  6. CF Foundation Hosts Congressional Briefing on Protecting People With CF and Other Pre-Existing Conditions

    April 13, 2018

    The event, held at the U.S. Capitol Visitor Center, aimed to educate members of Congress on the impact of the proposed rule to expand short-term insurance plans on people with serious and chronic health conditions.

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