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  1. More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

    March 2, 2020

    More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

  2. Circuit Court Rules on ACA in Texas v. United States

    December 19, 2019

    On Dec. 18, the Fifth Circuit Court of the United States issued a decision in Texas v. United States, ruling the individual mandate unconstitutional but sending the case back down to the district court for further review about the fate of the entire Affordable Care Act.

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  3. Rep. Mark Amodei Announced as New Co-Chair of Congressional CF Caucus

    July 12, 2019

    U.S. Rep. Mark Amodei of Nevada will join fellow Rep. Jim McGovern and Sens. Chuck Grassley and Ed Markey in co-chairing the Congressional Cystic Fibrosis Caucus, championing awareness of the rare disease and the Cystic Fibrosis Foundation’s search for a cure.

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  4. Nearly 200 Volunteers Advocate for Loved Ones During 11th Annual Teen Advocacy Day

    July 2, 2019

    Nearly 200 people from across the country -- including teens from 38 states -- came to Washington, D.C., on June 27 to advocate for the needs of their loved ones living with cystic fibrosis during the Cystic Fibrosis Foundation’s 11th Annual Teen Advocacy Day.

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  5. 150 Advocates Rally Behind Pre-Existing Condition Protections During March on the Hill

    March 12, 2019

    One hundred fifty advocates, backed by more than 5,000 connections from an additional 1,600 cystic fibrosis advocates across the country rallied behind protections for people with pre-existing conditions, like CF, during the Cystic Fibrosis Foundation’s 13th annual March on the Hill.

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  6. CF Advocate Serves as Witness at Congressional Hearing on Pre-Existing Conditions

    February 6, 2019

    Chad Riedy, an adult with cystic fibrosis, served as a witness on Wednesday before the House of Representatives' Education & Labor Committee at a hearing on the threats faced by workers with pre-existing conditions.

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