Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Last updated on January 31, 2013
Longtime friend of the Foundation and “CBS Evening News” anchor and managing editor Scott Pelley emceed the event, and Grace Frinks, 11, shared her personal CF story in a moving Bid for a Cure speech.
At the 10th annual Metropolitan, Washington, D.C. Breath of Life Gala this November, more than 700 friends of the Cystic Fibrosis Foundation gathered to raise a record-breaking $3.34 million for vital CF research, care and medical programs.
A Decade of Unwavering Dedication
Held at the National Building Museum in downtown Washington, D.C., the Breath of Life Gala is a time-honored tradition that brings together a diverse group of business leaders and CF Foundation volunteers for an evening of dinner and dancing. The stunning black-tie event was hosted by longtime friend and CF Foundation ambassador “CBS Evening News” anchor and managing editor Scott Pelley.
“The Breath of Life Gala gives me the opportunity each year to step back and reflect on the tremendous progress we're making in the effort to cure CF,” said Cameron Pratt, president of Foulger-Pratt Companies, and father of three children with CF. Pratt co-chairs the event with Don Wood, CEO of Federal Realty Investment Trust.
Wood, whose teenage daughter Rachel has CF, expressed gratitude for the attendees steadfast support of the Foundation's mission. “As we get closer to sweeping this hideous disease into the history books, trust that we will never forget the tenacity and persistence you have brought to the fight against CF,” said Wood. “We are forever grateful for your generosity and commitment to reaching our ultimate goal.”
During the event, guests bid on exciting silent and live auction items, from a luxurious Tuscan getaway to an Oldsmobile Super 88 with a Rocket V-8 motor, which sold for $35,000.
President and CEO Robert J. Beall, Ph.D., enjoys the evening with Emily Schaller, 30, who has CF and came all the way from Michigan to support the 10th annual Metropolitan, Washington, D.C. Breath of Life Gala.
Later in the evening, three courageous people with CF shared their unique stories with an extremely captive audience. Danny Bessette, 28, expressed gratitude to the Foundation for its great efforts in research, and the support he feels from the Foundation. Emily Schaller, 30, who participated in the clinical trial of Kalydeco™, told the audience how the therapy has changed her life immensely, and how the science behind Kalydeco has the potential to find a treatment for the majority of people with CF.
The youngest speaker, Grace Frinks, 11, shared her dream of becoming a singer when she grows up, and how the Foundation gives her hope that someday, her dream will come true. Lucky for Grace, an anonymous donor surprised her with four tickets to see teen pop sensation Justin Bieber in concert.
Bid for a Cure speaker Danny Bessette, 28, thanked the audience of more than 700 friends of the Foundation for their unwavering support in the fight against CF. The event raised $3.34 million to support vital research, care and education programs.
At an after-hours “Club Breathe” gathering, guests took to the dance floor and were dazzled by the smooth sounds of a live band, Mood Swings, while sipping signature cocktails. And to top off her night, Grace got a sneak preview of living her dream when she was invited on stage to perform Journey's “Don't Stop Believin'” with the band.
The Metropolitan Washington, D.C., Chapter would like to thank the event chairs Don Wood and Cameron Pratt, emcee and host “CBS Evening News” anchor and managing editor Scott Pelley and its extremely generous corporate sponsors.
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