Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Last updated on October 22, 2012
More than 120 generous CF Foundation volunteers and donors - primarily from the Southeast - gathered for a dinner reception in Orlando, Fla., to celebrate the milestones achieved over the past year in the fight against CF.
Lynda Griffin, shown here with her husband Patrick, shared with the crowd her 6-year-old son's story of his early struggles with CF and the news of his vastly-improved health now that he is on Kalydeco™.
Held at The Peabody Orlando, guests were joined by CF Foundation leaders President and CEO Robert J. Beall, COO C. Richard Mattingly and Executive VP for Medical Affairs Preston Campbell who thanked them for outstanding dedication to the CF mission.
“Thanks to your support, we have achieved unprecedented success in developing drugs that have improved the length and quality of life for those with cystic fibrosis,” said Rich Mattingly. “With your continued dedication, we will develop countless other treatments that will change the lives of all people with the disease.”
Stories of Hope and Acceptance
As guests enjoyed their dinner, they listened to two parents' personal accounts of raising children with CF. Lynda Griffin, mother of Cian, 6, shared her son's early struggles with the disease and news of his vastly-improved health now that he is on Kalydeco™.
Following Lynda's speech, Mike Beatty, father of Piper, 30, movingly spoke of his daughter's courageous acceptance of CF, which she's said is as much a part of her as her brown eyes and the fact that she's tall. With her acceptance, Beatty noted, is Piper's fierce determination to help change the course of the disease so all people with CF can live longer, healthier lives.
Rebecca and Brock Schroeder, whose son Brady has CF, enjoyed a conversation with the Foundation's Executive VP for Medical Affairs Preston Campbell.
Among the guests were many donors to the Milestones II campaign. Chaired by Joe O'Donnell, Milestones II: Accelerating the Search for a Cure is the second phase of the Milestones campaign, which raised $175 million. Milestones II is dedicated to raising an additional $75 million to help further accelerate the pace of progress toward finding a cure for CF.
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