Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Last updated on December 21, 2012
At the 18th annual Ultimate Golf Experience this November, more than 100 spirited golfers came together in South Carolina for a great weekend of golf, camaraderie and above all, for a great cause.
Grammy Award-winning comedian and longtime CF Foundation friend Lewis Black catches up with Bid for a Cure speaker, Wells Clark, 12, who has CF.
Held at the picturesque Kiawah Island Golf Resort, the three-day tournament served up tight competition, light-hearted laughs and unprecedented generosity. The event raised a record-breaking $700,000 to support the fight against cystic fibrosis.
Longtime CF Foundation friend, honorary trustee and Grammy Award-winning comedian Lewis Black, who has emceed and been the “soul” of the Ultimate Golf Experience for nearly two decades, entertained the crowd both on and off the links. Once again, Black had a great group of friends in tow - ranging from childhood pals to fellow entertainers - whose enthusiasm for supporting the CF cause remains strong year after year.
Guests were also wowed by the talent of Grammy Award-winning singer/songwriter Victoria Shaw and her musically-gifted daughters Ruby and Ava. Shaw is a dedicated friend of the CF Foundation, and wrote “One Heart at a Time” to benefit the CF cause in 1998.
Bid for a Cure
Victoria Shaw, Grammy Award-winning singer/songwriter and supporter of the CF Foundation, entertained guests with a performance on Thursday night.
“I am grateful for my parents' involvement in the Cystic Fibrosis Foundation. It allows me to see how very important the work of the Foundation is to my future,” said Wells, who recently battled a tough lung infection. “Every new drug, every new trial that the CF Foundation brings closer to me gives me so much hope for the day I will be living a life without cystic fibrosis.”
Inspired by Wells' courageous words, the audience enthusiastically raised their placards to bid on exciting live auction items. Popular items included themed “Hollywood” and “Broadway” trips, generously donated by Lewis Black and friends, with accommodations and airfare provided by Four Seasons and American Airlines.
Honors and Awards
Pat Villani, pictured with his daughter Anna, was the winner of the Gio Award, named after his late son whose infectious smile and competitive spirit are fondly remembered by those who met him in the early years of the Ultimate Golf Experience.
Each year, the winner of the golf tournament takes home the Gio Award, named in memory of Giovanni Villani, who was a familiar face at the Ultimate Golf Experience in its early years, and was known for his competitive spirit and infectious smile. He was a talented golfer who loved the game, and he lived courageously with CF until he was 14. This year, Gio's father Pat Villani was the winner of the tournament, and movingly accepted the award named in his son's honor.
In recognition of their steadfast support in the fight against CF, Ron and Pat Harris were presented with the Sheri Mount Champion for a Cure Award, named in memory of the late event co-chair, for her unyielding dedication to fight against CF.
The CF Foundation would like to thank the event chair:
And its corporate and major sponsors:
The 19th annual Ultimate Golf Experience will be held October 30 - November 3, 2013, at the beautiful Pelican Hill Resort in Newport Coast, Calif.
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Cystic Fibrosis Foundation
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