Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Published on October 29, 2013
Each month through the end of the year,
we'll feature a special person or team who played an integral role in the 2013
Great Strides walks. We hope you'll find this story to be inspiring as we
continue to make Great Strides in our efforts to find a cure for CF!
Health Professionals national team - led by HOSA students and teachers across
Raised more than $80,000 so far
Who We Are
Professionals, is a career and technical organization made up of high school and
college students who are interested in pursuing careers in health professions.
Each year, the organization works on a national service project as a way to
bring awareness to certain issues and to help members of the medical community.
For the last two years, HOSA has made the Cystic Fibrosis Foundation its
fundraising, education and community involvement, HOSA offers incentives to
students who reach fundraising benchmarks. HOSA students in Arizona enjoy the
chance to win t-shirts, water bottles and chair massages for their part in
supporting the search for a cure.
Why We Walk
of our members, Tiffany Steelmon, has cystic fibrosis. She created a video,
spoke at the national HOSA conference, and encouraged HOSA delegates to support
this cause. Tiffany's story moved many people - she put a face on this disease.
Our students have really rallied behind Tiffany and the entire CF community.
They want to be part of the cure.
What We're Thankful
Raising funds to help support the search for a cure doesn't
just help the CF community; it also helps HOSA students. In order to fundraise,
our students go out into the community to educate people about this disease and
the great things the Foundation is doing to help find a cure. Contact with
friends, families and members of the business community gives our students the
chance to develop communication and leadership skills. It's fun to be able to
see students grow as individuals while making a difference in the lives of
Advice For Other Great Strides Teams
best advice I can offer to other Great Strides teams is to keep the fundraising
fun. Not only do we let our students know how important this cause is, but we
make it enjoyable. We kick off the year with a pep rally and speaker, and we
also offer incentives for students to reach fundraising benchmarks. At the end
of the day, our students are learning about cystic fibrosis, educating others,
raising money and they're having fun doing it.
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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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