Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
Published on August 13, 2013
Brad James, event
chairman, and Craig M. Johnson, event honoree and president and CEO of Stallion
Oilfield Services, share a laugh as they welcome guests to the fourth annual
Energy Giving Back event.
Guests of the Cystic Fibrosis Foundation Texas
Gulf Coast Chapter's fourth annual Energy Giving Back event raised
$365,000 to help support the mission of the Foundation.
The event, held
June 27 at the Petroleum Club of Houston, salutes the energy industry for its
benevolence to the community, and brought together 175 guests for an evening of
celebration and philanthropy.
Guests heard an emotional plea from Shannon
Dudman, the adult daughter of Bryan Dudman, who helped found the event. Shannon
has cystic fibrosis and was too ill to attend the gala, but delivered an
emotional Bid for the Cure speech via her cell phone, which was
broadcast to attendees.
Melissa Eades, whose two children have CF,
thanked guests for their steadfast support to the city of Houston, the CF
Foundation and families like hers.
“My children are able to do things
they never before thought possible, thanks to a tiny pill that treats the
underlying cause of CF in a small group of people with the disease,” Eades said.
“But there are many more families who are still waiting for the next lifesaving
breakthrough. That's why your continued support is more important than
Another highlight of the
evening came during the event's live auction. The last item up for bid was a
large assortment of toys for the CF wing at Texas Children's Hospital, to be
donated in honor of the highest bidder.
“When the auctioneer explained
that children with CF are not allowed to play in the common play room or play
with toys from that room because of potentially deadly bacteria, the bidding
became fierce,” said Sissy Boyd, Executive Director of the Texas Gulf Coast
Chapter. “The toys went to the two highest bidders for a collective total of
$120,000. Guests erupted in an emotional standing ovation in support of the
The Texas Gulf Coast Chapter would like to
And its corporate sponsors:
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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