Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Published on March 19, 2013
Master of Ceremonies Bobby Gunther Walsh addresses more than 350 guests
at the Northeastern Pennsylvania Chapter’s Tennis Auction Ball and Tournament as
the tennis team of Carla Kevitch (left) and Rachel Cohen (right) look
Event chairs Drs.
Carla and Robert Kevitch hosted a dinner dance at the ArtsQuest Center in
Bethlehem, where guests had the opportunity to bid on and become the “owners” of
16 different pro-am tennis teams during a live auction. The night’s master of
ceremonies, Bobby Gunther Walsh, auctioned himself for a singles and double
match, raising an additional $6,000.
Becky Leonard, a young adult with
CF, made hope the theme of the event with her powerful Bid for a Cure
speech, which alone raised $35,000.
Drs. Carla and Robert Kevitch chaired the event, which raised $125,000
to support the mission of the Foundation.
Topping off the event, 16 pro-am tennis teams
competed in a tournament at the 24-7 Fitness Club in Allentown, Pa. the
following day. Jill Saunders and Debra Wagner won the Women’s Pro-Am tournament
while Fernando Perez and Tom Garrity won the men’s Pro-Am tournament. Depending
upon how their teams placed, team owners got to select from a myriad of prize
packages that included electronics, trips and shopping sprees.
Davila Sheftel, a longtime CF Foundation volunteer and sponsored tennis amateur
called this year’s affair one of the best she’s ever experienced.
weekend was truly wonderful. I didn’t think the Northeast Pennsylvania Chapter
could beat what they had done in the past, but this year’s gala and tournament
were outstanding,” Linda said. “I feel very happy to have been part of such an
The Northeast Pennsylvania Chapter would like to
thank the event benefactors:
And its corporate
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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