Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
In 2000, Andy Lipman, who has CF, combined his love of sports and family by creating a city-wide softball tournament in Atlanta, Ga. to help support the search for a cure. A Wish for Wendy has raised more than $1.9 million to help support the mission of the Cystic Fibrosis Foundation, and grows larger each and every year.
Published on February 20, 2014
In addition to founding and chairing the Wish for Wendysoftball tournament, Andy is a motivational speaker. He has been invited toshare his story about CF with communities around the world.
Andy Lipman always knew he had a sister — Wendy – but never knew much about her.
He knew she died as a baby, but it wasn’t until he turned 25 that he found the courage to ask his parents about the sister he never met. He learned that Wendy had died from cystic fibrosis — the same disease Andy was diagnosed with at birth.
“My parents kept those details from me because they didn’t want to scare me,” said Andy, who is now 40. “Growing up, I didn’t think I would live to be an adult. So when I learned that my sister also had CF, it was life changing. It gave me the resolve I needed to continue fighting for myself
and for all people who have CF.”
A Wish for Wendy
Notlong after having that difficult conversation with his parents, Andy wrote a book about his struggles with CF. He donated some of the proceeds to the Cystic Fibrosis Foundation, but he wanted to do more. So in 2000, he decided to combine his
love for sports, his family and his community by creating a city-wide softball tournament named in honor of his sister. He calls it A Wish for Wendy.
“I wanted something to remember her by. I want people to know who she was and for her to have some kind of existence on this Earth,” Andy said.
The softball team the Warriors is one of 16 teams thatcompetes each year at the Wish for Wendy Softball Tournament, started by AndyLipman, who has CF. Each year, teams complete in a day-long, double-eliminationtournament to raise funds in support of the Cystic Fibrosis Foundation.
He worked with the Georgia Chapter of the CF Foundation to promote the event and attract sponsors, growing it into one of the largest charity softball tournaments in the country.
A Wish for Wendy has generated $1.9 million in support of the Cystic Fibrosis Foundation’s mission to find a cure for CF. Sixteen teams complete in the day-long, double-elimination tournament for top prizes. Thanks to help and support from Andy’s family, the Atlanta community and celebrities like the Atlanta Falcons
cheerleaders, the event continues to grow year after year.
“Every dollar we raise is going to help people live longer — and there’s nothing better than that,” Andy said.
Chairing the softball tournament isn’t the only way Andy gives back to his community. When he isn’t spending time with his family, working full time or planning for the next year’s tournament, Andy can be found in schools, churches, hospitals and community centers across the world sharing
his inspiring story with others.
As a motivational speaker, he isn’t afraid to talk about the 40 pills, the hour-long vest therapy and aerosol treatments he must complete every day just to stay healthy. Nor is he afraid to talk about the anger and depression he has struggled with most of his life.
Andy says his biggest accomplishment in life is marrying hisbest friend, Andrea, and raising a family. Together, Andy and Andrea have twochildren.
“Thinking I wasn’t going to live a long life was really depressing and it seemed so unfair. I blamed my parents, I blamed God, I blamed everyone for this disease,” Andy said. “Today, I look at things differently. I live with CF, but I don’t let it limit what I can do.”
Andy hopes his actions and his words encourage more people to get involved in the search for a cure. He wants to inspire all people — especially those with CF — to reach for their dreams. After all, Andy has reached many of his. He says his biggest accomplishments are marrying his best friend Andrea and
having two children through in vitro fertilization.
“My goal is to help cure this disease — not only for me, but for kids who are scared to death because they have CF, and for their parents who are scared to death for them,” Andy said. “I have the ability to help other people, and that’s what I strive to do.”
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