Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
To the CF Foundation Staff and CF Community,Today, after 35 years with the Cystic Fibrosis Foundation -- and 21 years as president and CEO -- Robert J. Beall, Ph.D., has announced he is stepping down.
Published on July 13, 2015
On behalf of the CF Foundation Board of Trustees, we could not be more grateful for Dr. Beall's leadership or more in awe of his accomplishments. When Dr. Beall joined the Foundation, the median predicted age of survival of a person with CF was 18. Today, it is more than 40 years.
It would be difficult to point to another nonprofit leader who has made such a dramatic difference in the lives of people with a particular disease, and nobody beats Dr. Beall's record of innovation and passionate commitment to our mission.
Dr. Beall's revolutionary approach to research set the Foundation on an entirely new path to understanding the science behind CF and discovering new therapies. His bold thinking and ability to recruit some of the best minds to the CF effort has led to innovative treatments that have greatly extended length of life and improved the quality of life for people with the disease.
Dr. Beall pioneered the Foundation's successful venture philanthropy model, which has been a game changer in CF research and drug development. He inspired our Research Development Program, a dynamic, interdisciplinary research network that laid the groundwork for the discovery of the CF gene in 1989. In 1997, he established the Foundation's Therapeutics Development Program, a unique coalition that has advanced CF drug development through a centralized network of clinical trials and alliances with biotech companies. This program has been responsible for a continuum of breakthrough treatments, including Kalydeco™ and the recently approved Orkambi™, both of which attack the underlying cause of the disease.
As we look to the future, I am pleased to announce that the Foundation will be in the capable and experienced hands of Preston W. Campbell, III, M.D., executive vice president of medical affairs. A CF trailblazer in his own right, Dr. Campbell joined the CF Foundation 17 years ago and has the expertise and vision to propel the organization forward in the years to come. He will become the next president and CEO of the Foundation by January 1, 2016. I am confident that Dr. Campbell will continue to further the Foundation's mission in both research and patient care in the coming years.
Dr. Campbell currently oversees the Foundation's research and drug discovery and development efforts; in addition, he directs our network of care centers, clinical trials program, and national patient registry database. A distinguished pediatric pulmonologist, Dr. Campbell has more than 25 years' experience providing direct clinical care to people with CF, most recently at Johns Hopkins CF Care Center and at Vanderbilt's CF Care Center, where he served as center director for many years. I know his extensive knowledge and compassion for people with CF and their families are at the heart of all he does.
Over the coming months, we will share more information about Dr. Beall's continued role in the Foundation, as well as ways that the Board and the community will honor and celebrate his extraordinary accomplishments. During this time of transition, our promise remains the same: we will work tirelessly to improve the lives of all people with CF while we search for a cure. Working together and building off the tremendous progress we have achieved, I know we will get there.
Catherine (Cam) McLoud
Chair, Board of Trustees
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