Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Meb Keflezighi, one of the world's best runners, joined Lee University and ran in the 65 Roses 5K in Cleveland, Tenn. to support the fight against cystic fibrosis. Lee University was thrilled to welcome him as part of its longstanding tradition of raising funds in support of the CF Foundation's mission.
Published on April 16, 2018
For nearly two decades, Lee University in Cleveland, Tenn. has held a passion fundraiser in support of the Cystic Fibrosis Foundation's mission. Not only does it recruit students and the surrounding community to participate in the annual Great Strides walk, the Foundation's signature national fundraising event, but also it holds a 65 Roses 5K race.
This spring, Lee University and those who turned out to support its passion fundraiser and Great Strides, reached an unprecedented level of giving. Thanks to its efforts over the years and this spring's passion fundraising event, it has cumulatively raised over $1 million in the fight against CF.
The university was thrilled that Meb Keflezighi, America's greatest long-distance runner joined forces with the university and ran with them in the 5K. Keflezighi is the only athlete in history to have won the New York Marathon, the Boston Marathon, and an Olympic medal. He has also been part of four NCAA championships, 23 national championships, and four United States Olympic teams.
“Lee University has been a remarkable supporter of the Cystic Fibrosis Foundation over the last 18 years,” said Keflezighi. “I am proud of the work they have done and am honored to have been part of the 2018 Great Strides weekend.”
Keflezighi is not only a star runner, but he is deeply committed to helping others. As a refugee from war-torn East Africa, he believes deeply in 'going the distance' and encourages people of all ages to reach for new heights in all areas of their lives -- professionally, spiritually, and personally. His participation in Lee University's race demonstrates his compassion and desire to give back.
“I had heard great things about the community in Cleveland, Tenn., and I was thrilled to be there this year and encourage those in Cleveland and the surrounding areas to keep up the great work and raise the next million dollars,” he said.
Both the Lee University Great Strides walk in Cleveland, Tenn. and the university's 65 Roses 5K have been made possible year after year by the continued dedication of three exceptional individuals: Vanessa Hammond and Mike Hayes, who have served as Great Strides walk co-chairs, and Bill Estes, who has chaired the 65 Roses 5K. Hammond is the mother of a child with CF and Lee University's director of grants and foundation relations, and Hayes is vice president of student development. Estes is dean of the Helen DeVos College of Education at Lee University.
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