Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
For the second year, Mastercard® becomes the Greater New York Chapter's top corporate sponsor thanks to two senior level executives personally affected by cystic fibrosis who initially connected employees to the mission of the Cystic Fibrosis Foundation.
Published on November 15, 2018
Mastercard® celebrated its second year as the largest corporate sponsor for the Greater New York Chapter of the Cystic Fibrosis Foundation, bringing in over $90,000 from the chapter's Great Strides walk this year. This relationship was started by two Mastercard employees with a personal connection to cystic fibrosis -- Tim Berger, executive vice president, global tax, and Linda Kirkpatrick, executive vice president, merchants and acceptance.
Tim's two children were diagnosed with CF in 1998, and he has been fundraising for a cure ever since his first Great Strides walk 20 years ago. Today, Tim's children are both in their 20s and hoping to benefit from treatments coming down the pipeline.
“My kids both have a rare mutation of CF,” Tim said. “My son has been able to benefit from medications through participating in clinical trials, and my daughter is currently on the waiting list for a double-lung transplant.”
Like Tim, Linda also is passionate about supporting the Foundation's mission. “I started fundraising for cystic fibrosis when my aunt was diagnosed at age 25,” Linda said. “Today she is 51, and 5 1/2 years ago she received a double-lung transplant, which has allowed her to extend her life.”
Since becoming board members, Linda and Tim have gotten their Mastercard colleagues to participate in CF Foundation events and engage with the Foundation's mission.
“Mastercard has a very strong commitment to what we call 'doing well by doing good.' It's in our culture and our DNA to commit ourselves to giving back to the communities in which we serve,” Linda said. “This sponsorship is a natural extension of that.”
Mastercard supported multiple events in 2018 including the Breath of Life Gala, Great Strides, and Cocktails for a Cure. “What I love about our partnership with the Foundation is it's not simply a 'one-and-done' passive sponsorship. It's one that engages lots of employees. The connection of our business, our employee base, and the board has made for a very successful collaboration,” Linda said.
Mastercard's connection to the Foundation goes beyond sponsorship. By hosting several speakers to talk to employees about cystic fibrosis and encouraging employees to attend various Foundation events, employees are truly connected to the mission. Mastercard's young professional group, called the YoPros, has even joined forces with the Foundation's Tomorrow's Leaders program to build programs at Mastercard offices around the country.
“When I started fundraising for CF, life expectancy was less than 30 years old and now it is into the 40s,” Linda said. “A cure is in our reach, and Mastercard can say that it has been a part of that journey, which is very personal and very meaningful to me.”
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