Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Ray Poole and Julie Riedy to lead efforts in Washington, D.C., for volunteer conference, Until CF Stands for Cure Found.
Published on December 13, 2019
More than 600 Cystic Fibrosis Foundation volunteers will gather in Washington, D.C., for the 17th annual Volunteer Leadership Conference (VLC), themed Until CF Stands for Cure Found, from March 13-14, 2020. This invitation-only event, open to everyone via livestream, will bring together volunteers and families from across the country. Together, the Foundation and volunteers will share fundraising success stories, hear medical and scientific updates, and reignite our commitment to stay in the fight together.
The conference will be led by 2020 co-chairs, Ray Poole of Fort Thomas, Ky. and Julie Riedy of Alexandria, Va.
Ray first became involved with the Cystic Fibrosis Foundation after meeting his wife Rebecca, who lives with CF. Not long after becoming involved with the Wisconsin Chapter, he was named “Milwaukee's Finest” for his outstanding volunteerism and fundraising. Since then, he became a member of the Wisconsin Chapter's Leadership Board, served as the chair of Tomorrow's Leaders Board for the Cincinnati Chapter, and was the first guest on the Tomorrow's Leaders podcast, Breaking Through. Along with being an author and continuous improvement leader, Ray currently serves on the Tomorrow's Leaders council, on the post-transplant guidelines committee, and as a Cycle for Life team leader.
Long-time volunteer and advocate for the Metro DC Chapter, Julie Riedy
has been involved in the Foundation in countless ways to support her
husband Chad, who lives with CF. From co-chairing her chapter’s dinner dance to serving as
a panelist for a CF MiniCon virtual event, Julie’s passion for volunteering has
only grown stronger. She is an authored blogger on
the CF Community Blog, a CF Peer Connect mentor, a Tomorrow's Leader, a Great
Strides team leader, and has been featured on the Breaking Through podcast. In
addition to all of her involvements, she is also a full-time teacher and a mom.
The Foundation is thrilled to work with Ray and Julie on this important conference during our 65th anniversary year to honor how far we have come as a community, celebrate how much we have achieved together, and commit to staying in the fight until CF stands for cure found. Stay tuned and check back to watch VLC live in March 2020.
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