Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
The Cystic Fibrosis Foundation has renewed its commitment to supporting the health and well-being of adults living with cystic fibrosis by supporting free access to the online exercise, education, and well-being platform, Beam.
Published on March 9, 2021
The Cystic Fibrosis Foundation today announced an extension of its collaboration with Beam, the online exercise, education, and wellbeing platform, to offer adults living with cystic fibrosis in the United States unlimited access to the platform's exercise and well-being content throughout 2021.
The benefits of regular exercise for overall health and disease management are well documented. For people with CF, research shows that regular physical activity provides benefits well beyond better lung function -- keeping fit also helps strengthen bones, manage diabetes and heart disease, and improves your mood.
Beam offers users access to on-demand workouts, live classes, community groups, and special events. The platform connects users with physiotherapists, physical therapists, instructors, and other people living with CF while exercising in recognition that community is an essential component of any well-being program. Classes are led by specialized physical therapists and trainers who are experts in, or in some cases living with, cystic fibrosis.
“Wellness plays a critical role in an individual's quality of life no matter what challenges they are facing, and our goal is to help all people with CF to not simply survive but thrive,” said Sue Sullivan, senior director, head of community partnerships at the CF Foundation. “Our collaboration with Beam provides adults living with CF the opportunity to explore what wellness means to them, and offers classes to help users from all backgrounds, at all levels of fitness. We are excited to continue supporting free access to this important resource for the CF community.”
Along with its exercise content, Beam also offers educational content and emotional support to users, including specialty workshops, a yoga series for people living with advanced lung disease, and a program for people who are on Trikafta® and are exercising for the first time.
The collaboration began as a pilot program in 2019 before it was launched nationwide in 2020. To date, more than 800 adults living with cystic fibrosis in the United States have used this platform to further their health and wellness needs.
To sign up, click “Get Started” in the upper right-hand corner of Beam's homepage and navigate through the registration process. Once registration is complete, a pop-up window will appear to confirm that you have been granted free access from the Foundation. No promo code is necessary.
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