Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
The Cystic Fibrosis Foundation celebrates the decision issued by the United States Supreme Court in California v. Texas, ultimately protecting the Affordable Care Act.
Published on June 17, 2021
Today, the United States Supreme Court issued a decision in California v. Texas, dismissing the case and ultimately protecting key provisions of the Patient Protection and Affordable Care Act (ACA).
This decision marks the end of a three-year court case that challenged the health care law after repeal of the individual mandate in December 2017.
Since being passed more than a decade ago, the ACA has fundamentally changed the way people with cystic fibrosis access care and treatment by providing protections that were not previously available. Among other things, the law prohibits insurers from denying patients coverage because they have cystic fibrosis and bans insurers from imposing annual and lifetime limits on coverage. The ACA has also expanded access to coverage by allowing young people to remain on their parents' plans until age 26 and increased coverage for millions of Americans through Medicaid expansion.
"The Affordable Care Act is a cornerstone of the American health care system. We commend the U.S. Supreme Court's decision which will preserve safeguards and ensure continued access to treatments and care for millions of Americans, including people with CF," said Mary Dwight, chief policy and advocacy offer of the CF Foundation.
The CF Foundation has actively engaged in protecting provisions for those living with cystic fibrosis. As recently as early 2020, the CF Foundation joined an ad-hoc coalition of patient groups in filing an amicus brief and issued a statement urging the Supreme Court to swiftly take up the health care case. The group issued a statement in November urging the Supreme Court to prioritize patients and uphold the ACA.
While today's news affirms the availability of and protections within health insurance plans for those living with CF, the CF Foundation recognizes the need to build upon the progress made by the ACA. The CF Foundation continues to educate lawmakers about the vital nature of the law and opportunities to improve upon it, including increased subsidies for people who purchase marketplace coverage and other proposals to make coverage more affordable.
As we work to build upon the progress of the ACA, the CF Foundation invites members of the community to share their stories about the impact of the Affordable Care Act. Our work means nothing without the powerful stories from people with CF and their families to drive home the human impact of policy changes.
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