Why Participate in a Clinical Trial?

There have never been more opportunities to help develop new drugs for cystic fibrosis than there are today. Because of all the promising new research opportunities, as many individuals with CF as possible are needed to participate in clinical trials.

Jessica's Story

Learn about what motivates Jessica to participate in clinical trials.

What Are the Benefits of Participating in CF Clinical Trials?

Participating in a clinical trial can be a very satisfying and worthwhile experience. A few potential reasons to participate include:

  • People who participate in clinical trials may get access to potential new drugs before they become available to the public.
  • Participants can take a more active role in their own health care. People who participate bring us one step closer to finding a cure for CF.
  • Participants help find new therapies and drugs to improve the quality of life for everyone with CF.
  • Many who participate develop closer relationships with their care teams.
  • All clinical trial participants receive compensation for their participation.

Learn. Ask. Join.

To help promising new drugs move swiftly from the research and testing phase to the people who need them most, many people with cystic fibrosis are needed to participate in clinical trials. If you are interested in being a part of moving CF research forward, here are some simple steps you can take.

Learn About CF Clinical Trials

Learn more about what is happening in CF clinical research and what participation in a clinical trial might look like.

Ask Your Care Center Team About Participating in Trials

Your care team can help you find out whether participation in a clinical trial is right for you. Many CF clinical trials take place in the CF Foundation's Therapeutic Development Network (TDN). Find a list of centers that take part and contact information for a center near you.

Some questions you might consider asking your care team include:

  • What is the purpose of the study?
  • Why do researchers think that this particular drug or treatment might work?
  • What will I be asked to do?
  • What kinds of tests and experimental treatments are involved?
  • Who will be in charge of my care? Who should I communicate with during the trial?
  • Will the study benefit me or others? How do the possible risks, side effects and benefits compare with my current treatment?
  • How might this study affect my daily life?
  • How long will the study last?
  • Will hospitalization be necessary?
  • Will I be paid for my participation in the study and/or travel expenses?

Join the Search for New Treatments and Potentially a Cure

Find specific clinical trials you might be eligible for by using the search tool or by talking to your care team. Participation by as many people as possible is essential to the progress of CF research.

If you are unable to participate you can still help the search for new treatments by spreading awareness about clinical research and getting involved in the cause to cure CF.

Linda Bowman, 54, describes her participation in multiple CF clinical trials over several decades, which has benefitted her and people with CF everywhere.

Additional Clinical Trials Resources

Search for CF Clinical Trials

Find specific clinical trials you might be eligible for by using the clinical trials search tool.

For Children

Read a short story for school age children about one girl's experience joining a clinical trial.

Have Additional Questions?