Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
This award program supports research that will improve the development of novel nonsense mutation-directed therapies.
To better understand the obstacles, limitations, and challenges of developing a permanent cure for cystic fibrosis, the Cystic Fibrosis Foundation held a workshop in January 2019 focused on identifying the scientific gaps and challenges to develop a therapy for nonsense mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene. As an outcome of the workshop, the CF Foundation is pleased to announce a request for applications (RFA) to identify and support highly meritorious proposals that will accelerate the discovery of novel therapies for nonsense mutations.
To bring new technologies and expertise to the CF field, investigators without experience in CF research are encouraged to apply. Information about CF resources may be found in the Tools and Resources section.
There are two program options:
Successful proposals will focus on strategies, tools, technologies, and model systems that will advance the development of nonsense mutation-directed therapies for CF. These include, but are not limited to, studies aimed at the following:
U.S. residents and applicants from outside the U.S. are welcome to apply. International applicants and institutions are required to submit additional information in accordance with U.S. anti-terrorism restrictions.
Please see individual award policies and guidelines for additional guidelines and eligibility criteria. Eligibility requirements vary by award type.
Please review the appropriate Policies and Guidelines for complete submission information:
Deadline for all applications: October 24, 2019
Applications must be submitted online at proposalCENTRAL by 5 p.m. ET.
Those who are interested in any funding programs offered by the CF Foundation can get further information, or discuss the potential relevance of their studies or research by contacting the Grants and Contracts office at email@example.com.
Grants and Contracts Office
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814800-FIGHT-CF301-841-2614
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Cystic Fibrosis Foundation
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Suite 1100 N
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800-344-4823 (toll free)
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