Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
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65 Roses Gala
5:30 PM, October 3, 2021
Northeast Texas - Dallas
Join us for the 65 Roses Gala at Willow Brook Country Club on October 3rd for an evening of decadent cuisine, libations, live and silent auctions.
Wine and Roses Gala
6:00 PM, October 9, 2021
Atlanta Athletic Club
We are so excited to celebrate Wine & Roses in-person this year on October 9, 2021! We are letting science and the safety of the CF community guide this decision, and we will continue to keep you updated as things evolve.
Breath of Life Gala
7:00 PM, October 14, 2021
We have been inspired by the strength and generosity demonstrated by Gala supporters in our community for many years. Although we won't be together in person, we hope you will continue to help advance our mission to cure cystic fibrosis by supporting this incredible annual event! Please consider sponsoring, donating, bidding on our auction items, and joining us virtually as we celebrate together.
65 Roses: Live!
5:00 PM, October 17, 2021
As we move forward during these challenging times we continue to hold the health and safety of our community and our financial responsibility to our mission as our highest priority. With the knowledge and understanding, we have made the difficult decision to hold our 65 Roses Gala as a virtual celebration again in 2021.
Drive to a Cure Gala
5:00 PM, October 21, 2021
We have made the decision to keep our Drive to a Cure Gala virtual again this year, and we are so excited to celebrate virtually this fall! We are forever grateful for your steadfast support.
5:30 PM, December 4, 2021
Join us on the evening of December 4, 2021 for the Cystic Fibrosis Foundation- Minnesota-Dakotas' annual Breath of Life gala! Our virtual events offer a fantastic opportunity to unify our community in support of those with cystic fibrosis, as well as play a key role in helping us achieve our fundraising goal.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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