Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
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XVI Annual Kings Cup
October 6, 2020
Massachusetts / Rhode Island
To protect the health and well-being of the cystic fibrosis community and CF Foundation staff during the COVID-19 outbreak, the CF Foundation's Massachusetts/Rhode Island chapter has decided to cancel the Kings Cup XVII. We may not be able to be together in person, but we hope you will continue to advance our mission to cure cystic fibrosis! This year marks the Cystic Fibrosis Foundation's 65th Anniversary. In honor of this landmark year, I hope you will consider, even in these difficult days, to continue to help us to end cystic fibrosis. The Kings Cup sponsorship and your support means more than ever, as we long for all people to breathe freely. Our goal is to raise $165,000 in support of the 2020 Kings Cup in honor of the Foundation's 65th Anniversary. We look forward to when we can gather again - we are all in this together, and no one is stronger than the CF community!
Beach, Brews, & BBQ
October 17, 2020
Southern California - Orange County
Due to COVID-19, we have decided to cancel our 2020 sixth Annual Beach, Brews, and BBQ presented by BJ's Restaurants. Nothing is more important than the health and well-being of the CF community. We may not be able to be together in person, but we hope you will continue to advance our mission to cure cystic fibrosis by making a donation. While great progress has been made, there is still work to be done. We will not stop until CF stands for Cure Found.
CFsational: Women of WNY Luncheon
October 22, 2020
Western New York - Buffalo
With the health and well-being of the CF Community being the CF Foundation's top priority, we have decided to cancel the 2020 CFSational: Women of WNY Luncheon, originally scheduled for Thursday, October 22nd at The Twentieth Century Club of Buffalo.
We would like to thank our past supporters, and invite you to make a 100% tax deductible donation in lieu of this year's luncheon.
Fiesta for CF
October 31, 2020
Texas Gulf Coast
The Texas Gulf Coast Chapter is excited to announce that in honor of the 65th anniversary of the Cystic Fibrosis Foundation, Karen & Bryan Dudman have kindly offered a $4,225 local matching gift opportunity! Beginning July 1, 2020, all gifts in the amount of $1 to $4,225 in support of the Fiesta event will be matched dollar for dollar up to $4,225 by October 31, 2020 or when the match is completed, whichever comes first. Donations received in excess of the matching goal of $4,225 will be used to support the CF Foundation's mission.
Barrett's Halloween Fundraiser
N/A, October 31, 2020
Northern New England
Thank you so much for your past participation. We are so grateful for your 20 years of support to our Halloween Party. Due to Covid-19, The Northern New England Chapter of the Cystic Fibrosis Foundation is taking our 2020 events virtual!
Construct a Cure
7:00 PM, November 12, 2020
The mission of the Cystic Fibrosis Foundation is deeply personal to Choate Construction and Gulf Stream Construction. This year, the two companies proudly band together to raise funds and awareness, and ask their industry to join them as we Construct A Cure for CF.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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