Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
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Golf
Coach Randy & Laura Rahe Golf Classic
8:00 AM, August 21, 2020 Ogden Golf & Country Club
Utah
Join Weber State University's Men's Basketball Coach Randy Rahe and his wife Laura Rahe for an unforgettable day of golf at the Ogden Golf & Country Club, while helping the Cystic Fibrosis Foundation add tomorrows to the lives of those with cystic fibrosis and ultimately find a cure.
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Nell's Golf Challenge
7:00 AM, September 8, 2020 TPC River Highlands
Connecticut
Come join us for a day of golf like no other. Challenge the course where the pros play the Travelers Championship, TPC River Highlands. The limited field allows us to have unique opportunities and challenges that the “usual” tournament does not offer.
22nd Annual Links to a Cure
11:30 AM, September 14, 2020 Salisbury Country Club
Virginia
The Harvey Family, in partnership with the Cystic Fibrosis Foundation Virginia Chapter, invites you to help save and improve the lives of children and adults living with CF by joining us for the 22nd Annual Links to a Cure Golf Tournament at the Salisbury Country Club.
Marlin Oil Golf Classic
8:00 AM, September 14, 2020 Oak Tree National
Sooner - Oklahoma City
Please join us for the 18th Annual Marlin Oil Golf Classic! This prestigious golf tournament provides golfers the opportunity to play Oak Tree National's exclusive course. This course is one of the most challenging golf courses in the United States and has been ranked among GOLF Magazine's 100 Greatest.
Links to a Cure
September 17, 2020 DoubleTree by Hilton Downtown Omaha
Nebraska
For this year ONLY, the Cystic Fibrosis Foundation's Links to a Cure event is joining forces with our Hope Brews event. That's right, our top-notch, two-day golf and gala event combined with our beer tasting event, what a wonderful idea!
18th Annual CF Golf Classic
September 21, 2020
Massachusetts / Rhode Island
Important Note: Help Us Stay On Course To Cure CF! Although we won't be meeting in person 9/21, you can still support the tournament, our mission to find a cure for CF and serve our community during this unique and challenging time. Thank you for your continued and generous support.
Cystic Fibrosis Foundation
4550 Montgomery Ave. Suite 1100 N Bethesda, MD 20814
301-951-4422
800-344-4823 (toll free)
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