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  1. The Senate Heard Our Voice: The Role of Advocacy in CF

    By Mary B. Dwight August 4, 2017

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

  2. Press Release

    New CBO Score Indicates 22 Million Americans Would Lose Coverage Under the Senate Better Care Reconciliation Act

    June 26, 2017

    Twelve patient/consumer groups urge senate to reject the bill.

  3. Father Worries That Proposed Health Care Reforms Could Affect Daughters With CF

    By Paydon Miller February 15, 2017

    As a parent of two young adults with cystic fibrosis, Peter knows the financial challenges and obstacles people with the disease face when trying to access quality, affordable care.

  4. Advocacy News

    Cystic Fibrosis Foundation Joins 86 Organizations to Call on Congress to Protect Medicaid

    March 20, 2017

    On March 20, the Cystic Fibrosis Foundation and 86 other organizations called on Congress to protect Medicaid, a critical source of coverage for people in the cystic fibrosis community.

  5. Ask a Case Manager: Picking an Insurance Plan and Understanding Social Security Disability

    By Anne Willis December 7, 2017

    In the second installment of our “Ask a Case Manager” series, two more Compass case managers answer questions directly from the cystic fibrosis community about the challenges they're facing when it comes to accessing CF care.

    Topics:

  6. Ask a Case Manager: Health Insurance, Living Expenses, and Clinical Trials

    By Anne Willis June 26, 2017

    Since Cystic Fibrosis Foundation Compass launched last year, we've learned so much from the community and have helped people with cystic fibrosis find creative solutions for all kinds of problems. That's why we are excited to unveil our new “Ask a Case Manager” blog series.