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  1. The Senate Heard Our Voice: The Role of Advocacy in CF

    By Mary B. Dwight August 4, 2017

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

  2. Real Talk: Expectations vs. Reality – Part 2

    By Ashling Knight October 20, 2015

    Emily, Piper and Somer continue their “real talk” about living for each day, reinventing their future and being up for a good challenge.

  3. My Life Before and After the Affordable Care Act

    By Abbe Granelle April 15, 2021

    Having two sons living with cystic fibrosis, I struggled for years with the financial burdens and restrictions of the insurance market. Since the Affordable Care Act was passed in 2010, I no longer have to worry about lifetime caps and astronomical premiums -- two issues that caused enormous grief for my family.

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  4. I Am Not My Job

    By Rich DeNagel January 29, 2016

    When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn’t look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.

  5. How I Transitioned Off of My Parents’ Health Insurance Without the World Ending

    By Wendy Caroline January 9, 2018

    Ever since I graduated high school, I’ve dreaded the day I would have to transition off of my parents’ health insurance plan. But, by using some important resources, I discovered that getting my own health insurance wasn’t as scary as I thought.

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  6. Get Covered: Preparing for the 2017 Open Enrollment Period

    By Hajin Moon October 12, 2016

    Learn about the 2017 health insurance landscape and get tips on preparing for open enrollment from a CF Foundation Compass expert.