Working with Your Child's School

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  1. What My Children Taught Me About Explaining Their CF

    By Lisa C. Greene, M.A., CFLE August 22, 2017

    As a frequent public speaker, I was surprisingly nervous the day before I spoke to my kids' classmates about the realities of cystic fibrosis several years ago. Luckily, my kids knew just what to say to calm my nerves.

  2. Tips for Sending Your Child With CF to Kindergarten

    By Julie Lazzara, M.C. August 31, 2017

    Sending your child to kindergarten for the first time is hard enough, but when your child has cystic fibrosis, it is even harder. Here’s how I handled my daughter’s transition to kindergarten and the lessons I learned along the way.

  3. Teaching the Teachers: Putting a 504 Plan Into Practice

    By Erin Delaney September 19, 2016

    No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.

  4. Planning for CF at School

    By Erin Delaney August 19, 2016

    Sending our son to school was scary, but we have a plan to keep him healthy.

  5. How We Explain My Child’s CF

    By Rachael Havey August 27, 2018

    Figuring out your child’s CF diagnosis is complicated on its own, but learning how to communicate everything that goes into caring for your child to those outside of the CF community can be even more overwhelming. Here are my tips and tricks to using your voice to both educate and advocate on behalf of your child.

  6. Ask a Case Manager: What Should I Consider When Going to College?

    By Heather Chesiyna August 14, 2019

    In the fourth installment of our “Ask a Case Manager” series, we discuss what you should consider when making the transition from high school to college.