Clinical Trials

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  1. You Did It! EACT Passed in The House

    By Mary B. Dwight September 29, 2015

    Sr. Vice President for Policy and Community Affairs Mary Dwight reflects on the passage of the Ensuring Access to Clinical Trials Act (EACT) and what it means for the community.

  2. Why You Should Care if IACT Expires

    By Patty Burks, M.A., RN, CCRC September 9, 2015

    Anything that slows down progress in research and the cure for this cystic fibrosis is my sworn enemy. Learn why the Improving Access to Clinical Trials Act (IACT) matters for our progress in the fight against CF and what you can do about it.

  3. Article

    Why Participate in a Clinical Trial?

    Clinical trials (or studies) are critical to developing new treatments for cystic fibrosis. When you are considering whether you or your child should participate in a clinical trial, you must consider the risks and the benefits.

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  4. Why I Took a RARE Opportunity to Help Myself and Others

    By Joey Disser June 14, 2018

    Participating in the RARE study gave me an opportunity to play a role in finding a therapy that one day could help me and other people with CF who have two nonsense mutations.

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  5. Why I Decided to Join a Clinical Trial on My 12th Birthday

    By Kathryn B. March 7, 2017

    Last year -- just one week before my 12th birthday -- my doctor reached out to my family and asked me if I wanted to enroll in a clinical trial. Here’s why I decided to say yes.

  6. Topic

    What to Consider When Joining a Clinical Trial

    The decision to join a clinical trial is personal, and you should weigh the benefits and risks of participating as well as the time commitment required. This section will cover the questions you should ask the research team and basics such as compensation.

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