Advocacy

More than 60 CF Foundation volunteers came together in Washington, D.C. to speak with their elected officials on behalf of friends and family members affected by the disease during March on the Hill, the Cystic Fibrosis Foundation's signature annual advocacy event.

Thanks to the efforts of dedicated Cystic Fibrosis Foundation volunteers, legislatures in New Hampshire, Georgia and Pennsylvania have passed resolutions officially recognizing May as CF Awareness Month. 

Fifteen-year-old Shelby Klug, an aspiring rock star, who has cystic fibrosis, told more than 800 guests of the Cystic Fibrosis Foundation Orange County Office’s Pipeline to a Cure about her love for music and singing. Now in its seventh year, Pipeline to a Cure began in 2008 to celebrate the development of hypertonic saline, and the role that surfers played in identifying the therapeutic effects saltwater has on people with CF.  

In honor of National Cystic Fibrosis Awareness Month, people all across the country will spread awareness about the disease and encourage others to support the mission to find a cure this May.

When Katherine Lambert-Pennington was diagnosed with cystic fibrosis in 1974, her parents were told to prepare themselves for heartache. Katherine was not expected to live beyond the age of 7. Today, she is 42, married and an associate professor at the University of Memphis.