Advocacy

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  1. What I Learned During My Internship at the CF Foundation

    By Dana Handler August 23, 2016

    Dana Handler, an intern with the Foundation’s advocacy team, recounts her experience and explains her renewed confidence that we’ll find a cure for cystic fibrosis.

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  2. We Are Ready to Make Our Voices Heard

    By KC White November 30, 2016

    A top priority for the next administration and Congress is health care reform. As an adult living with cystic fibrosis, I’ve been wondering what this will mean for me, our community and our ability to access high-quality, affordable care.

  3. U.S. Senate Cystic Fibrosis Caucus Adds Momentum to the Fight

    By Sen. Edward J. Markey June 21, 2016

    Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”

  4. Advocacy News

    Social Security Administration Updates Eligibility Requirements for Disability

    June 9, 2016

    The CF Foundation applauds the Social Security Administration’s updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

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  5. If You Speak, They Will Listen: Advocating on the Hill

    By Mary B. Dwight February 18, 2016

    March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.

  6. How One Question Launched the Senate CF Caucus

    By Jaclyn Strube June 22, 2016

    One of the questions that we ask our representatives during the Foundation’s signature advocacy event, March on the Hill, is to join the Congressional CF Caucus. Here is my story of what happened when I (accidently) asked a senator to join that caucus.

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