Advocacy

Showing 1–6 of 15 results

Filter By

Clear Filters

  1. Watch Teens Make Their Voice Heard on Capitol Hill

    By Remi Orlinsky July 17, 2018

    Watch how teens advocated on behalf of their friends and family with cystic fibrosis on Capitol Hill during the 10th annual Teen Advocacy Day.

    Topics:

  2. This Year, Join March on the Hill Virtually!

    By Mara Cray March 8, 2018

    For people with cystic fibrosis, our story is the most powerful tool we have to stand up for ourselves and fight for our needs. Although I can’t always be there to share my story with legislators in person, I’ll be joining many others from the CF community for our first March on the Hill Online Day of Action to make my voice heard.

  3. Realizing My State Representatives Are Human

    By Elaine Ruh, MBA, PHR, SHRM-CP December 5, 2018

    While we often see politicians on the campaign trail, there’s another side to them that the public doesn’t always see. By sharing my story, I’ve made real connections with my state representatives to help them better understand CF and positively impact my son’s future.

    Topics:

  4. News

    President Trump Signs Right to Try Legislation Into Law

    May 31, 2018

    Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.

  5. News

    In D.C. and Nationwide, CF Advocates Lobby Congress During 2018 March on the Hill

    March 19, 2018

    More than 200 CF advocates from 47 states held nearly 400 meetings with members of Congress and their staff, and more than 850 advocates from across the country called their members of Congress as part of the CF Foundation’s first March on the Hill online Day of Action.

  6. Advocacy News

    CF Teen Advocates Visit Capitol Hill for 10th Annual Teen Advocacy Day

    July 5, 2018

    More than 200 advocates from 32 states traveled to Washington, D.C., on June 28 for the Cystic Fibrosis Foundation’s 10th annual Teen Advocacy Day, which enabled teens to meet with their elected officials on Capitol Hill to fight for access to high-quality, specialized care for their friends and loved ones living with CF.

    Topics: