Advocacy

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  1. “I Want to Be Paul Freeman When I Grow Up”

    By Dora Nagy September 8, 2015

    Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he’s only 18.

  2. From Teen to Adult Advocate: Oakey Finds His Community and His Voice

    By Dora Nagy June 3, 2016

    Lukas Daskas found something in the Cystic Fibrosis Foundation’s Teen Advocacy Day that he had been searching for his whole life: a sense of community and understanding by others who know what it’s like watching a loved one battle cystic fibrosis.

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  3. CF Foundation Volunteer Keeps Brother’s Memory Alive Through Advocacy Efforts

    By Dora Nagy August 10, 2015

    Read how Blake Leyers helps put a face on this disease by sharing her brother's story.

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