Advocacy

Members of the CF community have the power to inspire action and help shape public policy. Learn how you can play an advocacy role in your community.

The Affordable Care Act (ACA) has changed the way people with cystic fibrosis access care and treatment over the last decade. With transformative therapies now available to many people with CF, and new treatments in the pipeline, these protections are more important than ever.

The CF Foundation is part of an amicus brief in support of the Affordable Care Act in Texas v. United States. The brief outlines the critical nature of patient protections and coverage expansion included in the Affordable Care Act. 

As Congress considered potential reforms to the U.S. Tax Code, the Cystic Fibrosis Foundation sent a letter asking Congress to protect the Medical Expenses Deduction and the Orphan Drug Tax Credit.

S-FAR letter to Senators Bennett and Young supporting the Pioneering Antimicrobial Subscriptions to End Upsurging Resistance (PASTEUR) Act.

S-FAR letter to President-elect Joseph R. Biden, Jr. asking for a renewed emphasis on combatting antibiotic resistance.