Blog Post

Showing 1–6 of 22 results

Filter By

Clear Filters

  1. Why I’ve Become Grateful for My CF

    By Bobby Foster March 31, 2017

    I never imagined that I would see cystic fibrosis as something to be grateful for. But now, in my 23rd year of life, I am thankful that CF has allowed me to open up about my struggles through spoken word poetry and find freedom in shared humanity.

  2. The Two Sides of Loneliness

    By Holly Seay September 24, 2019

    I’ve found it hard to cope with CF as I have gotten sicker, and loneliness comes about in both physical and emotional ways. Even though the people in my life may not know exactly what I’m going through, I’m trying to let them in on what I’m feeling.

  3. Striving for the Impossible: Caring for My Wife With CF

    By Ray Poole January 6, 2017

    How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.

  4. Seeing My Future for the First Time With CF

    By Jennifer Stump July 28, 2016

    Living with cystic fibrosis, your dreams for the future can be a little hazy. But while attending my grandmother’s 90th birthday celebration recently, I was struck by an image of myself that I had never seen before: myself in the distant future.

  5. Redefining the Definition of Wellness

    By Jessika Allison February 13, 2019

    Taking a step back and taking a break from social media helped me to realize that it’s okay to have a definition of health and wellness that looks completely different from anyone else.

  6. My Life With CF Makes Me Feel Like a Rose Among Thorns

    By Gina Alejandra November 19, 2019

    Cystic fibrosis has been a challenge to me, but I’ve been able to blossom nevertheless.