Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
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Eugene 2019 Great Strides
9:00 AM, August 3, 2019
Alton Baker Park
Oregon - Portland
For more than 30 years, Great Strides - the Cystic Fibrosis Foundation's largest national fundraising event - has supported the Foundation's mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe and shortens lives.
For 30 years, Great Strides - the Cystic Fibrosis Foundation's largest national fundraising event - has supported the Foundation's mission to cure cystic fibrosis and raise awareness for this rare, genetic, life-shortening disease that makes it difficult to breathe and shortens lives. Great Strides provides a fantastic opportunity for family, friends, students, and colleagues to come together and make a difference in the lives of people with CF.
Bob Gilder's Platt Golf Challenge
7:45 AM, August 12, 2019
The Reserve Vineyard & Golf Club
Join us for Bob Gilder's Platt Golf Challenge 2019! The tournament's name reflects pro golfer Bob Gilder's commitment to the event. He will join us again at The Reserve for an outstanding day of golf while supporting a wonderful cause!
Portland Firefighter Stairclimb Challenge 2019
7:00 AM, September 22, 2019
US Bancorp Tower
The Portland Firefighter Stairclimb Challenge is a competitive race up 40 floors and 800 steps of the U.S. Bancorp Tower. Firefighter participants are outfitted in over 70lbs of full “combat gear” including Self Contained Breathing Apparatus (SCBA) commonly used in the line of duty. Participants compete for individual titles in both men's and women's categories.
Larry VandenBrink's Dinner Gala
5:00 PM, October 10, 2019
Portland Art Museum
Join us for an extraordinary evening and experience critically acclaimed Chef Vitaly Paley's unmatched creativity as he prepares a soul-filled four-course dinner paired with incredible local wines.
65 Roses Film Festival
December 8, 2019
Clinton Street Theater
CFF Oregon/SW Washington Tomorrow's Leaders present the newest celebration of film in the Rose City. Join us at the historic Clinton Street Theater for a day featuring films curated by members of Tomorrow's Leaders. All proceeds benefit the mission of the Cystic Fibrosis Foundation.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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