Our Advocacy Work

Today, the U.S. Senate released its version of the health care reform bill, titled the Better Care Reconciliation Act, and in response, the Cystic Fibrosis Foundation affirmed its opposition to the legislation.

Patient advocacy letter in opposition to Right to Try legislation.

Letter from the Cystic Fibrosis Foundation in support of renewing funding for the Children’s Health Insurance Program (CHIP).

Medicaid plays an important role in helping one-third of adults with cystic fibrosis in the U.S. afford the specialized care and treatments they need to stay healthy.

Our work to help ensure that people with cystic fibrosis have access to high-quality, specialized care is guided by five core principles.

Patient-Focused Drug Development for Nontuberculous Mycobacterial (NTM) Lung Infections – Discusses the risk and significant burden of NTM infections for people with cystic fibrosis and commends the Food and Drug Administration (FDA) for its public meeting on this issue.