Our Advocacy Work

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    The Affordable Care Act and CF

    The Affordable Care Act (ACA) has changed the way people with cystic fibrosis access care and treatment over the last decade. With transformative therapies now available to many people with CF, and new treatments in the pipeline, these protections are more important than ever.

  2. Download

    Texas v. United States Amicus Brief

    The CF Foundation is part of an amicus brief in support of the Affordable Care Act in Texas v. United States. The brief outlines the critical nature of patient protections and coverage expansion included in the Affordable Care Act. 

  3. Press Release

    Ten Patient Advocacy Organizations Applaud Committee Focus on Market Stabilization

    September 7, 2017

    The organizations urge continued protections for patients.

  4. Advocacy News

    Teens Meet with Members of Congress to Raise Awareness About Cystic Fibrosis

    July 1, 2013

    Teenagers from 23 different states gathered in the nation’s capitol to advocate on behalf of their brothers, sisters, parents, cousins and friends who have cystic fibrosis at the Cystic Fibrosis Foundation’s fifth annual Teen Advocacy Day, held last week. 

  5. Teaching as We Learn: Visiting a CF Care Center with Policymakers

    By Stacey Falardeau August 30, 2016

    A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.

  6. News

    Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosis

    June 22, 2017

    Today, the U.S. Senate released its version of the health care reform bill, titled the Better Care Reconciliation Act, and in response, the Cystic Fibrosis Foundation affirmed its opposition to the legislation.