Our Advocacy Work

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  1. U.S. Senate Cystic Fibrosis Caucus Adds Momentum to the Fight

    By Sen. Edward J. Markey June 21, 2016

    Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”

  2. If You Speak, They Will Listen: Advocating on the Hill

    By Mary B. Dwight February 18, 2016

    March on the Hill brings a mix of new and familiar faces to Capitol Hill every year. The connections and stories that our advocates share with their elected officials are making lasting impressions that impact the entire CF community. And as this event has grown, so too has the cystic fibrosis story.

  3. Advocacy News

    Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

    December 15, 2016

    The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.