CFTR Modulators

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  1. What I Learned Going Off of Trikafta

    By Mandy B. Anderson December 30, 2020

    Trikafta® restored my energy and eliminated my cough, but a spike in liver enzymes forced me to take a month-long break from the medication. I’m grateful that I’m back on it and also thankful for what that break taught me.

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  2. What I Learned About My Trikafta Weight Gain

    By Meagan Helmick March 6, 2020

    Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn’t alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn’t mean that I wasn’t grateful for all Trikafta has done for me.

  3. What I Didn’t Expect From Trikafta

    By Zack Swanborn January 15, 2021

    Like everyone else, I was excited to finally have a modulator that would work for me. Shortly after I started Trikafta®, though, I developed severe GI problems, and I was left to worry what this meant for my future on the drug.

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  4. What Does “Better” Mean on Trikafta?

    By Elizabeth Amber November 21, 2019

    The imagination can run wild thinking of all the possible scenarios that could happen after trying the new triple-combination modulator, Trikafta™. Managing expectations -- while allowing yourself to hope -- is how I choose to approach my wait for the new drug.

  5. News

    Wall Street Journal: At Last, Cystic Fibrosis Drugs Seem Near

    October 20, 2011

    Drug makers are edging closer to new treatments for cystic fibrosis that could stop the destructive impact of the disease, says an article in The Wall Street Journal today.

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  6. News

    Wall Street Journal Health Blog: CF Foundation Not Just a Cheerleader

    October 25, 2011

    The Wall Street Journal reports that the CF Foundation played a major role in the funding of a new potential medicine – Kalydeco (VX 770) – and is a pioneer in driving drug development for rare diseases.

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