Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
100 College Parkway, Suite 280
Executive Director: Heather McKeever
The Western New York Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers Buffalo, Rochester, and the surrounding areas. Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission - finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more!
CFsational: Women of WNY Celebration
12:00 PM, April 29, 2021
Western New York
With the health and well-being of the CF Community being the CF Foundation's top priority, the decision has been made to host the 2021 CFSational: Women of WNY Luncheon as a virtual celebration on Thursday, April 29th, 2021. This signature event recognizes women in our community who inspire others through their dedication and commitment to the CF Foundation.
Grampions: Let's Talk The Walk
7:00 PM, May 6, 2021
Grampions gathering virtually to learn more about Virtual Great Strides and share ideas of what their Great Strides Teams are doing. This is also a great way to meet other grampions and share stories of your CF Fighters.
Rochester Cycle for Life - Virtual
July 17, 2021
Western New York - Rochester
CF Cycle for Life is a premier cycling series featuring bicycle rides across the country. These daylong events showcase scenic routes and multiple distances to raise funds and awareness for cystic fibrosis. Put your wheels in motion and help us get one step closer to making CF stand for Cure Found.
65 Roses Golf Tournament
8:00 AM & 1:00 PM, August 23, 2021
Lancaster Country Club
Western New York - Buffalo
Join the Western New York Chapter of the Cystic Fibrosis Foundation for the 8th Annual 65 Roses Golf Tournament. This fun and friendly tournament will be an opportunity for corporate and community supporters of those living with CF to come together and "swing a club for a cure."
6:00 PM, September 30, 2021
The Western New York chapter of the Cystic Fibrosis Foundation will celebrate 12 years of Rising Stars this year. Each year, the CFF honors young professionals, ages 21 to 40, in WNY that are committed to professional growth through a guided fundraising and awareness campaign.
6:00 PM, October 14, 2021
The Cystic Fibrosis Foundation Western New York Chapter invites you to help improve the lives of children and adults living with CF while recognizing young professional leaders and innovators in the Greater Rochester area.
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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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