Learn about cystic fibrosis, a genetic lung disorder that affects the pancreas and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
810 River Ave, Suite 100
Mrs. Pat Joseph
The Western Pennsylvania Chapter - Pittsburgh of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
11th Annual Brewer's Ball
7 PM, April 20, 2018
IBEW #5/Circuit Center & Ballroom
Join us for the 11th Annual Brewer's Ball! This one-of-a-kind beer tasting event event has hosted over 60 different types of brews presented by local craft breweries, wholesalers and more along with featured food from 15 Pittsburgh restaurants and brewpubs each year.
5 PM, April 26, 2018
Printscape Arena at Southpointe
The Corporate Cup encourages friendly competition among local business and corporations, while building employee morale and team spirit - all for an amazing cause!
Run to Cure CF Pittsburgh
May 6, 2018
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts, drug and therapy developments, and progress we've made in the search for a cure. Recently, our community has been celebrating many successes in drug development and therapy advances for those with CF, but the lives of young people are still being cut far too short. Will you join us in the fight and the search for a cure?
Pittsburgh's 50 Finest
6:00pm, August 18, 2018
Wyndham Grand Pittsburgh Downtown
2018 marks the 23rd Anniversary of Pittsburgh's 50 Finest presented by UPMC and UPMC Healthplan! This elite group of the area's most accomplished women and men are honored each year for their success in their careers and their involvement in the community. Each honoree commits to raising much needed funds and awareness for the Cystic Fibrosis Foundation (CFF).
Pittsburgh CF Cycle for Life 2018
8 AM, September 9, 2018
Get your wheels in motion and #RideForAReason! Join us for our 6th annual bicycle event as we ride through some of the most picturesque and scenic terrain in Western Pennsylvania.
The Wine Opener
6:00pm, September 13, 2018
Grand Hall at the Priory
The Wine Opener invites food and wine lovers to enjoy a perfect night out on the town in one of the city's most unique venues, Pittsburgh's Grand Hall at The Priory. Guests will spend the evening sampling a variety of wine and spirits, paired with small bites from top local restaurants!
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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