Our Commitment to Advancing Health Experiences and Outcomes

At the Cystic Fibrosis Foundation, we believe every person with CF deserves the opportunity to lead a long, fulfilling life. That’s why we’re committed to advancing health experiences and outcomes for all people with the disease. Cystic fibrosis can affect people from every racial and ethnic background, and no two journeys with CF are the same — each is shaped by a blend of identity, health, life circumstances, where someone lives, and more. Today: 

• We’re working to deliver more effective treatments to more people by investing in the science and innovation needed to ensure that future breakthroughs benefit everyone with CF.  

• We’re focusing on meeting the evolving health needs of people with CF so they receive the right care, at the right time, in a supportive environment. We also advocate for fair and affordable access to care. 

• We’re partnering with the entire CF community — people with CF and their loved ones, clinicians, researchers, and dedicated supporters — to better understand the full spectrum of CF experiences because challenges vary considerably. This helps us tailor resources where possible and provide meaningful support.

Thank you for helping us build a better future.

We’re investing in science and innovation to power future breakthroughs for every person with cystic fibrosis. This includes efforts such as:

• Accelerating genetic therapies that have the potential to treat any person with CF, regardless of their mutations

• Supporting international clinical trial networks to advance treatments for ultra-rare CF mutations

• Funding treatments that may work better for people with certain mutations or people who experience side effects

We’re addressing and advocating for the evolving needs of people with CF so that they receive adequate, timely, and affordable care. This includes efforts such as:

• Advancing CF newborn screening efforts to achieve better health outcomes for all babies born with the disease, regardless of background, geography, or mutations

• Advocating for affordable treatments and high-quality care that people with CF can access regardless of income, insurance, or geography

• Training international care teams on site — especially those in low- and middle-income countries — through our Global Care Project to improve the quality of care, clinical outcomes, and life expectancy for people with CF

We’re partnering with people with CF and those who care for them so we can best understand their experiences and serve their variety of needs. This includes efforts such as:

• Creating opportunities for connection among people from similar backgrounds and experiencing similar challenges

• Empowering people with CF and their families to share their experiences, perspectives, priorities, and knowledge to impact CF research, care, and programs

• Enabling people with CF with wide-ranging experiences to share their stories with the CF community

We regularly share updates on our work to advance health experiences and outcomes. Sign up to receive emails by selecting “Advancing health experiences and outcomes.”

We develop resources that raise awareness and discuss ways to improve health experiences and outcomes in CF.

• Understanding What Affects CF Health Experiences and Outcomes

• Dispelling Misconceptions About CF 

• Health Equity in Cystic Fibrosis | YouTube 

• Our International Efforts

• CF Community Blog