Our federal and state advocacy efforts support our mission to cure CF and ensure that everyone with cystic fibrosis has access to high-quality, specialized care. We evaluate policies and legislation through one lens: How would this impact people with cystic fibrosis and their families?
Thanks to advances in treatments and specialized care, people with cystic fibrosis are living longer and have more hope than ever. Sustaining this progress requires strong public policies that protect affordable coverage and ensure access to high-quality care, new therapies, and, ultimately, a cure.
In a complex and rapidly changing health care landscape, we support policies that promote adequate, affordable health coverage so people living with cystic fibrosis can receive the high-quality, specialized care and treatments they need to live long, healthy lives.
Prescription drug prices can make it difficult for people with cystic fibrosis to access the treatments they need. The Foundation works with policymakers to support solutions that lower costs while protecting continued innovation and patient access to lifesaving therapies.
Sustained investment in research and strong federal policies are essential to advancing new treatments for cystic fibrosis — including urgently needed antibiotics. The Foundation works to ensure scientific innovation is supported and that new therapies can be developed, approved, and delivered to people with CF.
From early diagnosis to the ongoing cost of care, people with cystic fibrosis face challenges which can impact their health at every stage of life. The Foundation works to improve early detection and reduce financial barriers so people with CF can get the care they need.
Access to affordable, reliable coverage is essential for people with cystic fibrosis, which includes Medicaid and state assistance programs that help fill gaps in care. The Foundation works to protect and strengthen these programs so people with CF can maintain consistent access to the treatments they need.