I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don't want him to have any setbacks.
Misty is a content writer who attended Southeastern Louisiana University and studied Mass Communications. Her son, Jax, was born in 2008 and was diagnosed with CF soon after birth. Misty and her family have been active with the CF Foundation since 2009 through her son's Great Strides team, Team Jax. Team Jax has won many local fundraising awards such as the Breath of Life Award and has raised over $30,000 for the CF Foundation. Misty is passionate about traveling, bookstores, podcasts, and CF advocacy. She lives in Baton Rouge, La., with her husband, Landon, their daughter, Elliot, Jax, and their Boston Terrier. Misty writes at The Red Stick Mom, mistyroussa.com, and can be found on Instagram at @mistyroussa.
After my son was diagnosed with cystic fibrosis, I was stunned by some of the insensitive questions and comments I received from friends and family. Over time, I learned that their unsolicited feedback provided teachable moments that I hope to pass along to other families.