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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Kianna holding her dog in the woods.

BLOG

How I Got Through the Forest Fires in Oregon
Jan. 18, 2023 | 7 min read

My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper. 

Kianna McAdams
Ray smiling with his wife Rebecca wearing bike helmets and sunglasses.

BLOG

COVID Revealed My Wife’s Supporters
Aug. 19, 2022 | 6 min read

During COVID, it became apparent who in our lives supported the decisions we made for my wife’s health.

Ray-Poole-Headshot-Square
Chris smiling outside with his wife, Kate.

BLOG

What To Do When “Most People Will Be Fine” And You Are Not “Most People”
May 17, 2022 | 8 min read

Having CF has always involved doing things nobody else around us is doing because, well, we have to — and COVID-19 won’t be any different. As a post-transplant CF patient who happens to be a practicing pharmacist, I am writing about the tools we now have in a world of limited universal restrictions and precautions.

Chris Raybuck
Meagan standing outside of an RV.

BLOG

A Look at the Pandemic Then and Now
March 31, 2022 | 5 min read

I’ve had to make many changes in response to the COVID-19 pandemic to protect my health. Not all the changes were welcome, but now that I’ve adjusted, I’m enjoying my new normal.

Meagan-Tenyer-Headshot

BLOG

Why Sharing My Positive COVID Results Mattered
Feb. 7, 2022 | 4 min read

What I thought was a cold turned out to be COVID. I shared my positive test result with my CF care team. Not only did they let me know of an important drug that was available to reduce the risk of getting severe symptoms, but they also helped me find it since the drug was in short supply.

Carmelina Hreinsson headshot
Katherine Finegan smiling with her husband at a baseball game.

BLOG

Prioritizing Myself This Holiday Season
Dec. 17, 2021 | 4 min read

Because I am immunocompromised after having a lung transplant, I still take extra precautions with COVID-19. I still feel awkward with turning down invitations and limiting my own guest list at gatherings, but I know my closest family and friends understand and do whatever they can to accommodate me.

Katherine Finegan headshot