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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Kianna holding her dog in the woods.


How I Got Through the Forest Fires in Oregon

My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper. 

Kianna McAdams
| 7 min read
Ray smiling with his wife Rebecca wearing bike helmets and sunglasses.


COVID Revealed My Wife’s Supporters

During COVID, it became apparent who in our lives supported the decisions we made for my wife’s health.

| 6 min read
Chris smiling outside with his wife, Kate.


What To Do When “Most People Will Be Fine” And You Are Not “Most People”

Having CF has always involved doing things nobody else around us is doing because, well, we have to — and COVID-19 won’t be any different. As a post-transplant CF patient who happens to be a practicing pharmacist, I am writing about the tools we now have in a world of limited universal restrictions and precautions.

Chris Raybuck
| 8 min read
Meagan standing outside of an RV.


A Look at the Pandemic Then and Now

I’ve had to make many changes in response to the COVID-19 pandemic to protect my health. Not all the changes were welcome, but now that I’ve adjusted, I’m enjoying my new normal.

| 5 min read
Lauren Molasky sitting down on the couch with her husband, two children, and dog.


Year Two in the Pandemic

In my experience, the best way to support a loved one with cystic fibrosis is to listen closely and remember the details of his or her most common treatments and complaints.

Lauren Molasky headshot
| 5 min read


Why Sharing My Positive COVID Results Mattered

What I thought was a cold turned out to be COVID. I shared my positive test result with my CF care team. Not only did they let me know of an important drug that was available to reduce the risk of getting severe symptoms, but they also helped me find it since the drug was in short supply.

Carmelina Hreinsson headshot
| 4 min read
Luisa sitting on the grass with a mask on outside with her dog.


Giving You Permission to Accept My Chronic Illness

Although I don’t consider having a chronic illness like cystic fibrosis a good thing, I accept it and I think others should, too.

| 3 min read
Katherine Finegan smiling with her husband at a baseball game.


Prioritizing Myself This Holiday Season

Because I am immunocompromised after having a lung transplant, I still take extra precautions with COVID-19. I still feel awkward with turning down invitations and limiting my own guest list at gatherings, but I know my closest family and friends understand and do whatever they can to accommodate me.

Katherine Finegan headshot
| 4 min read
Liz Fletcher smiling with her husband.


Letting Go of People Who Don’t Respect My Boundaries

Because my husband has cystic fibrosis, I take extra precautions to protect him from COVID-19 exposure. That is why I can’t continue to have relationships with friends and family who refuse to get vaccines or wear masks. They are putting my husband -- and others like him -- at risk.

Liz Fletcher headshot
| 7 min read
Handwritten sign from a child thanking doctors for their research for COVID-19.


Children With CF and COVID-19

As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19.

Lael Yonker headshot
| 5 min read
Trista Escobedo Baby Blanket


Making Tough Decisions To Keep Our Daughter Safe

Having to isolate from our loved ones after the birth of our first child -- right as the COVID-19 outbreak hit our community -- was doubly difficult, but with a little education, our support network came through for us.

Trista Escobedo Headshot
| 9 min read


Risk Assessment in an Ever-Changing World

Even though I've been vaccinated against COVID-19, I've been using a risk assessment tool to try to make sure that I'm still being as safe as possible.

| 5 min read