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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Newborn baby Eden laying in a basket.

BLOG

Caring for My Newborn With CF and My Mental Health

Learning that my daughter has cystic fibrosis has been a struggle for me and my family, especially as I deal with postpartum depression. 

Haley Bond
| 5 min read
Jennifer holding hands with her husband and daughter.

BLOG

Finding an Identity Beyond CF and Motherhood

As I continue to realize the benefits of Trikafta® and my daughter grows up and needs me less, I feel as though I’m losing key parts of my identity — being a person with cystic fibrosis and a mother. However, I’m also finding I have room to let myself grow and explore different sides of myself.

Jennifer-Livingston-Headshot
| 6 min read
Monique smiling with her mom hugging her and leaning on her shoulder.

BLOG

Relearning Who I Am After Trikafta

After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.

Monique Wiegand
| 6 min read
Caroline's daughter in a hospital bed with her nurses.

BLOG

It’s Never Too Early to Start Therapy

At age 5, my daughter started to feel the traumatic emotional effects of cystic fibrosis. Fortunately, the care center’s social worker helped her find a healthy path through it.

Caroline Kelly headshot
| 7 min read
Shana holding up her son and making silly faces.

BLOG

Take Social Media With a Grain of Salt

I’ve learned that paying too much attention to the idealized lives of people on social media can give me a skewed vision of my own.

Shana-Bull-headshot
| 6 min read
Jessica doing her breathing treatments in her bed with her two young daughters next to her.

BLOG

Taking Care of Myself as a Mother With CF

As a mother with cystic fibrosis, I have learned to prioritize my mental and physical health in order to stay healthy for my two young daughters. I have invited them to come alongside me on my journey as we cherish the little moments in our lives.

Jessica McDearman headshot
| 8 min read