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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Rima Manomitis smiling in a bathing suit.

BLOG

How I've Learned to Accept My Body and Its CF Battle Scars

Despite the scars and appearance-altering side effects of medications, I am proud of what my body has survived in the face of cystic fibrosis. Being a brand ambassador has lifted my spirits and led to a greater acceptance of my body, which has withstood a double-lung transplant, a feeding tube, and a port.

Rima-Manomaitis-Headshot
| 6 min read
Morgan Barrett outside smiling in a selfie photo.

BLOG

Losing My CF Identity

Now that I am feeling healthy on Trikafta®, I no longer feel special for thriving despite the challenges of cystic fibrosis. I don’t feel like I belong in the CF community anymore, and I miss that sense of camaraderie that comes from a shared struggle.

Morgan-Barrett-Headshot
| 7 min read
Anna Payne with a mask sitting in a hospital chair.

BLOG

34 and Living With Colon Cancer

At 34, I had no obvious symptoms or family history of colon cancer. My body was telling me something was wrong and compelled me to push for more tests to reach a diagnosis. Now every day I get up and learn to be comfortable living in the uncomfortable. With more screenings happening earlier, you may never have to.

Anna Payne headshot
| 9 min read
Angel-Newman-Selfie-DVDs-Featured-Rectangle

BLOG

Six Tips to Help You Incorporate Self-Care While Managing Your CF

While you are grinding through a seemingly never-ending cycle of cystic fibrosis treatments, it also can be helpful to engage in self-care activities that bring you happiness. This nurturing routine can help you keep perspective and remind you of why you are undergoing all these treatments in the first place.

Angel-Newman-Headshot
| 4 min read
Jessica-Stahlman-Family-Boardwalk-Featured-RECTANGLE

BLOG

How a Staircase Taught Me to Take Better Care of My CF

A few years ago, it took one small staircase for me to realize that my health was on the decline. I look back now on that moment fondly, though, because it helped me learn to listen to my body.

Jessica-Stahlman-Headshot
| 4 min read
Sydney-Sabol-Treatment-Featured-Rectangle

BLOG

Adding Medical Cannabis to My Care Plan

After careful thought, I decided to add medically prescribed cannabis to my care regimen. After using it for six months, I've noticed an improvement in both my mental and physical health.

Sydney-Sabol-Headshot-Square
| 5 min read