CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Chelsea kissing her husband on the beach after they are married with their wedding party in the background.


3 Things I Learned Planning My Wedding While Having CF

Cystic fibrosis kept me from thinking that I’d ever get married, but my improved health made my dream wedding possible. Three approaches helped me manage my CF while celebrating the happiest day of my life.

Chelsea Stahl Spruance
| 7 min read
Nathan smiling sitting on a bench outside in front of a stone wall.


Tips on How to Support Your Partner With CF

After my partner was diagnosed with cystic fibrosis, I had to learn how to support her and keep myself from getting rundown. Over time, I have learned that doing small things, such as ordering medicines, can be enormously helpful. 

Nathan Brown
| 4 min read
Margarete smiling with her friends in a selfie photo.


Making Lifelong Friendships With Other Moms of Kids With CF

A chance meeting at a CF conference 12 years ago gave me one of the most valuable gifts: my CF Mama friend group. Since then, we’ve invested time in our friendship and supported each other through the laughs and the tears.

Margarete Cassalina
| 5 min read
Alyssa Buechner on the set of Channel 15 News


Reducing Stigma Around CF

As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.

Alyssa Buechner
| 5 min read
Judy in a hospital bed smiling with Lacey eating popsicles.


How Chronic Illness Brought Us Together

My friendship with Judy, who had cystic fibrosis, helped me see how I could accomplish my career goals despite my own chronic illness. Unfortunately, she died six years ago, but her inspiration lives on, and I know she would be proud of me.

Lacey Stevenson
| 5 min read
Drew smiling hugging her husband, Ramon.


Role Reversal: When Someone With CF Becomes a Caregiver

As someone with cystic fibrosis, I struggled with the fact that I might be a burden to those who helped care for me. Things changed when I married Ramón and learned the true meaning of caregiving.

| 5 min read