CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Kasey standing in front of a chalk mural that is a picture of rainbow wings.


The Best Reluctant Decision I Ever Made

I resisted being listed for a lung transplant; but now, almost six years later I’m thankful — especially to my donor — for my new life.

Kasey Raffensperger headshot
| 10 min read
Larissa in a hospital gown hugging her son after her lung transplant.


Redefining Myself After Lung Transplant

A life with cystic fibrosis taught me how to be sick. After a lung transplant, I had to learn how to be well.

Larissa Marocco headshot
| 7 min read
Lauren Molasky sitting down on the couch with her husband, two children, and dog.


Year Two in the Pandemic

In my experience, the best way to support a loved one with cystic fibrosis is to listen closely and remember the details of his or her most common treatments and complaints.

Lauren Molasky headshot
| 5 min read
Barry smiling with his brothers at a sports game


How Josh Having CF Has Shaped My Outlook on Life

My brother, Josh, who has cystic fibrosis has been through more struggles than anyone I know, but he has always kept a positive attitude -- even while awaiting a lung transplant. This outlook on life inspires me and helps me see the best case in any outcome.

Barry Beattie headshot
| 6 min read
Naomi at the top of a hike.


My Unpredictable Path to Lung Transplant

A sudden health setback turned my eventual lung transplant into an immediate one. Although the transplant didn’t go exactly to plan, my preparation helped the process go more smoothly.

Naomi Feltz headshot.
| 5 min read
Nicholas Kotowski Baby Sonogram


Why We Chose Surrogacy After My Wife With CF Had a Lung Transplant

My wife and I opted for a surrogate to carry our child following her double-lung transplant. After five years of struggling with a bad surrogacy agency, we finally switched providers and found a surrogate who is now carrying our child.

| 6 min read