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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Madison smiling next her husband, who is holding their daughter Karleigh


How One Diagnosis Can Change Everything

When my daughter was born, her newborn screening indicated that it was unlikely she had CF. But after months of mysterious symptoms, a sweat test confirmed her diagnosis. This unlocked answers not only for my daughter, but for our entire family.

Madison Patterson
| 7 min read
Julie hiking in the woods and turning around to smile at the camera


A CF Diagnosis at My Age?

I was recently diagnosed with cystic fibrosis at age 67. Although I love my CF care team, I think it will be important for them to understand age-related care in addition to CF care — especially as the CF population ages.

A headshot of Julie Carel
| 7 min read
Anna Faith standing outside a hospital wearing a mask and holding her insulin pump.


How My Community Helped Me Cope With My Late Diagnosis

After managing various chronic symptoms my whole life, I was finally diagnosed with CF as an adult. As I struggled to cope with the news, my community rallied around me and taught me what true support looks like.

Anna Faith wearing a graduation cap and robe.
| 5 min read
Zachary holding his daughter Ruth at their annual volleyball tournament, Volley for the Cure CF


How I Navigated My Daughter’s CF Diagnosis

My wife and I were heartbroken when our daughter, Ruth, was diagnosed with cystic fibrosis as a newborn. But CF can’t stop us from being optimistic about what the future holds for our family.

A professional headshot of Zachary Wilson
| 5 min read
Gabrielle laying in bed with her mom while using her nebulizer


Figure Skating Helped Me Cope With My CF Diagnosis

My life was turned upside down when I was diagnosed with cystic fibrosis caused by a rare mutation, but my passion for figure skating has helped me stay healthy and happy through it all.

Gabby wearing a purple Great Strides t-shirt
| 5 min read
Debra Lase standing outside by a tree


Finding Out I Have CF at 69

I was recently diagnosed at 69 years old. Although it helped explain why I had been sick so often and gave me a new community, I can’t help but think about the lost time when my disease went untreated.

Debra Lase Headshot
| 7 min read