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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Daniela Cortez taking a selfie in scrubs in the mirror of a bathroom


My Long Journey to a CF Diagnosis

I struggled with health issues my whole life — including a liver transplant — but nobody could explain what was wrong with me until I was diagnosed with CF as an adult. Now I finally have an answer, but I’m still figuring out how to feel about it.

A selfie of Daniela Cortez
May 21, 2024 | 10 min read
Stephanie and her daughter wearing matching "Gobble Jog" t-shirts


Finding Stability in the Unknown

It took years until a doctor helped us get to the bottom of my daughter’s chronic respiratory issues; that’s when she was diagnosed with a CFTR-related disorder. While this wasn’t the conclusive answer we were hoping for, it opened the door for support we’d never had before. 

A headshot of Stephanie Watts
May 15, 2024 | 6 min read
Madison smiling next her husband, who is holding their daughter Karleigh


How One Diagnosis Can Change Everything

When my daughter was born, her newborn screening indicated that it was unlikely she had CF. But after months of mysterious symptoms, a sweat test confirmed her diagnosis. This unlocked answers not only for my daughter, but for our entire family.

Madison Patterson
April 10, 2024 | 7 min read
Julie hiking in the woods and turning around to smile at the camera


A CF Diagnosis at My Age?

I was recently diagnosed with cystic fibrosis at age 67. Although I love my CF care team, I think it will be important for them to understand age-related care in addition to CF care — especially as the CF population ages.

A headshot of Julie Carel
Oct. 19, 2023 | 7 min read
Anna Faith standing outside a hospital wearing a mask and holding her insulin pump.


How My Community Helped Me Cope With My Late Diagnosis

After managing various chronic symptoms my whole life, I was finally diagnosed with CF as an adult. As I struggled to cope with the news, my community rallied around me and taught me what true support looks like.

Anna Faith wearing a graduation cap and robe.
Oct. 3, 2023 | 5 min read
Zachary holding his daughter Ruth at their annual volleyball tournament, Volley for the Cure CF


How I Navigated My Daughter’s CF Diagnosis

My wife and I were heartbroken when our daughter, Ruth, was diagnosed with cystic fibrosis as a newborn. But CF can’t stop us from being optimistic about what the future holds for our family.

A professional headshot of Zachary Wilson
Sept. 29, 2023 | 5 min read