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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Daniela Cortez taking a selfie in scrubs in the mirror of a bathroom

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My Long Journey to a CF Diagnosis

I struggled with health issues my whole life — including a liver transplant — but nobody could explain what was wrong with me until I was diagnosed with CF as an adult. Now I finally have an answer, but I’m still figuring out how to feel about it.

A selfie of Daniela Cortez
May 21, 2024 | 10 min read
Stephanie and her daughter wearing matching "Gobble Jog" t-shirts

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Finding Stability in the Unknown

It took years until a doctor helped us get to the bottom of my daughter’s chronic respiratory issues; that’s when she was diagnosed with a CFTR-related disorder. While this wasn’t the conclusive answer we were hoping for, it opened the door for support we’d never had before. 

A headshot of Stephanie Watts
May 15, 2024 | 6 min read
Madison smiling next her husband, who is holding their daughter Karleigh

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How One Diagnosis Can Change Everything

When my daughter was born, her newborn screening indicated that it was unlikely she had CF. But after months of mysterious symptoms, a sweat test confirmed her diagnosis. This unlocked answers not only for my daughter, but for our entire family.

Madison Patterson
April 10, 2024 | 7 min read
Julie hiking in the woods and turning around to smile at the camera

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A CF Diagnosis at My Age?

I was recently diagnosed with cystic fibrosis at age 67. Although I love my CF care team, I think it will be important for them to understand age-related care in addition to CF care — especially as the CF population ages.

A headshot of Julie Carel
Oct. 19, 2023 | 7 min read
Anna Faith standing outside a hospital wearing a mask and holding her insulin pump.

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How My Community Helped Me Cope With My Late Diagnosis

After managing various chronic symptoms my whole life, I was finally diagnosed with CF as an adult. As I struggled to cope with the news, my community rallied around me and taught me what true support looks like.

Anna Faith wearing a graduation cap and robe.
Oct. 3, 2023 | 5 min read
Zachary holding his daughter Ruth at their annual volleyball tournament, Volley for the Cure CF

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How I Navigated My Daughter’s CF Diagnosis

My wife and I were heartbroken when our daughter, Ruth, was diagnosed with cystic fibrosis as a newborn. But CF can’t stop us from being optimistic about what the future holds for our family.

A professional headshot of Zachary Wilson
Sept. 29, 2023 | 5 min read