CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Maura Wozniak smiling at the beach with her husband and two children.


Having Tough Conversations With My Kids About My CF

Since my kids were born, I’ve had two lung transplants and spent months in the hospital at a time for cystic fibrosis complications. It’s just as hard for my kids to go through as it is for me, so we make sure we talk about my CF openly as a family.

| 4 min read
Brian outside pointing at the Golden Gate Bridge


The Good and Bad of Transplant

The road to recovery after a lung transplant can be long and arduous. It took me awhile to appreciate all the benefits, but I am blessed with the ability to breathe and a new-found confidence that has emboldened me to try new things.

Brian Armstrong
| 6 min read
Tara smiling with her partner.


Fear of Living Life Fully After Transplant

I’m still trying to define who I am after a double-lung and liver transplant five years ago. Although I am much healthier, I sometimes still struggle with my physical and mental health, and I don’t know what I want to do next in my life.

| 8 min read
Jerry smiling with a thumbs up with his nurse in the hospital while wearing a mask.


Transplant Recovery Then and Now

I underwent liver and kidney transplants in 2021 after a successful lung transplant in 2012. For a number of reasons, the recovery from second transplant was much more difficult.

Jerry Cahill Headshot
| 5 min read
Kasey standing in front of a chalk mural that is a picture of rainbow wings.


The Best Reluctant Decision I Ever Made

I resisted being listed for a lung transplant; but now, almost six years later I’m thankful — especially to my donor — for my new life.

Kasey Raffensperger headshot
| 10 min read
Larissa in a hospital gown hugging her son after her lung transplant.


Redefining Myself After Lung Transplant

A life with cystic fibrosis taught me how to be sick. After a lung transplant, I had to learn how to be well.

Larissa Marocco headshot
| 7 min read