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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Brian smiling sitting on a mountain top.

BLOG

What Traveling Has Taught Me About CF

My experience traveling with cystic fibrosis has taught me that a chronic illness should never slow you down. It may require extra planning and packing, but it’s worth it and definitely doable.

Brian Donahoe
| 6 min read
Daniel Pachas

BLOG

Not Letting CF Hold Me Back From Traveling

After starting on Trikafta®, I finally became able to travel without getting an immediate exacerbation when I returned home. Now, I am relishing the opportunity to travel abroad, while taking every precaution necessary to protect myself from the pandemic.

Daniel-Pachas-Headshot
| 4 min read
Road-trip-child-with-cf-rectangle

BLOG

Top 10 Tips for Road Trips With Your Child With CF

Traveling with a kid with cystic fibrosis is better if you plan ahead, get organized, and create a schedule -- but always be able to roll with the punches if that schedule changes.

Shana-Bull-headshot
| 7 min read
Chelsea-Spruance-Underwater-Island-Living-Featured-Rectangle

BLOG

Living the Island Life With CF

I decided that I wanted to live on the Caribbean island that I grew up on. Although it takes some planning and work, I'm thriving there.

Chelsea Stahl Spruance
| 7 min read
Gabriella-Balasa-Traveling-Nebulizer-Featured-Rectangle

BLOG

Traveling With CF: Plan Ahead, Be Flexible, and Accept Help

After three surgeries to fix a collapsed lung, I still managed to travel abroad. It took a lot of planning, help from family and friends, and simply not caring about what other people think.

Gabriella-Balasa-Headshot
| 7 min read
Tiffany-Rich-Travel-Disney-World-Featured-Rectangle

BLOG

No-Stress Travel Tips for People With CF

If you have cystic fibrosis, don't waste your strength on the travel leg of your vacation. Save your energy for the fun stuff by asking for help when you need it.

Tiffany-Rich-Headshot
| 4 min read
Jaclyn-Strube-Vacation-Friends-Featured-Rectangle

BLOG

7 Tips for Taking a Vacation Without Your Kid With CF

Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.

Jaclyn-Strube-Headshot
| 6 min read
Susie-Rider-Andrea-Doing-Treatment-Featured-Rectangle

BLOG

6 Ways to Prepare for the Holidays When You Have CF

With the holidays fast approaching, it's time to prepare for the change of schedule in your cystic fibrosis routine.

Susie-Rider-Headshot
| 4 min read
Luanne-McKinnon-Breathing-Fairy-Rectangle

BLOG

Living Above My CF Diagnosis in the ‘60s and Beyond

When I decided to study abroad in 1974, I also decided that I would not allow CF to stop me from living my life to the fullest.

Luanne-McKinnon-Headshot-Square
| 5 min read
Katie-Caul-Abroad

BLOG

To Travel is to Live

During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.

Katie-Caul-headshot
| 5 min read
Dora-Nagy-stacy-packing

BLOG

Packing Tips for Your Upcoming Trip

Hear how frequent flier Stacy Motenko keeps herself organized as she turns traveling with CF into a manageable affair.

Dora-Nagy-headshot
| 1 min read
juliana-keeping-eli-beach-square

BLOG

A Tot, Travels and Cystic Fibrosis

During our family round trip from Oklahoma to Florida, I learned a thing or two about traveling with a CF tot.

Juliana-keeping-headshot
| 4 min read