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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Maddie Grace Newton smiling and holding a microphone.

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My Experience on The Voice Australia

Coping with cystic fibrosis as a child led to depression. Creativity -- especially singing -- helped me find myself and led to my auditioning for The Voice Australia.

Maddie Newton headshot
Maddie Grace Newton
| 5 min read
Handwritten sign from a child thanking doctors for their research for COVID-19.

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Children With CF and COVID-19

As a community, we are very good at masking and keeping a safe distance to reduce risk from germs. And just like we have highly effective therapies to treat CF, we now have highly effective vaccines to protect our kids from COVID-19.

Lael Yonker headshot
Lael Yonker, MD
| 5 min read
Kelsey Scott selfie with baby outside

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How Finding Other Mothers to Share the Good and Bad of CF Helped Me

Being a parent to a child with cystic fibrosis is hard. You need to hear from someone else in your shoes that it’s OK to grieve for the life you thought you were going to have with your child.

Kelsey Scott Headshot
Kelsey Scott
| 7 min read
Katie O'Grady running Boston Marathon

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After a Lung Infection and a Pandemic, I Finally Ran the Boston Marathon

I’ve been a runner for most of my life. After having to drop out of three previous marathons because of my CF, I was finally ready to run this year’s Boston Marathon.

Katie-O-Grady-Headshot
Katie O'Grady
| 6 min read
Lauren and her mom smiling

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Coping With Comparisons on Social Media When You Have CF

When I scroll through my social media accounts, it’s hard not to compare myself to other people and feel like I could have accomplished so much more had it not been for my cystic fibrosis. Instead of getting depressed, I now rely on therapy, positive affirmations, and being kind to myself to preserve my mental health

Lauren Vignola headshot
Lauren Vignola
| 5 min read
Xan Nowakowski Thumbs Up Watching NACFC

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Expanding Treatment Options for Everyone Who Has CF

I was pleased to see that the third plenary session at the North American Cystic Fibrosis Conference included patient stories that reflected the diverse experiences of those with cystic fibrosis. I also like that it focused on the need for bold action to help those who can't benefit from modulators and centered on the full ecology of treatment innovations that can benefit every person with CF.

Xan Nowakowski Headshot
Alexandra “Xan” Nowakowski
| 7 min read